#Scleroderma Face Changes

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(12)
#Scleroderma Face Changes Reel by @farahkhaleck - This is rare! No one told me about all the changes I was about to face when I was diagnosed with #scleroderma and here are 3 things I wish I knew    1
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@farahkhaleck
This is rare! No one told me about all the changes I was about to face when I was diagnosed with #scleroderma and here are 3 things I wish I knew    1. Literally someone else in the mirror! Yo, this is the scariest thing anyone could ever have to undergo. Scleroderma is a skin tightening condition and so my facial skin was so stretched out it exposed my upper jaw taking away my upper lip too. This was gradual but the changes were so fast it is scary. Goodbye lipsticks and balms 😁 and yes my face has changed quite a bit ever since.   2. Restricted movement. Skin is so tight it has restricted mobility and now I have walk very carefully because if I bump into something I can’t control/balance myself and poof to the ground. Imagine not being able to casually raise your hand to straighten your hijab! A whole new balancing act 😁  3. Ohhh the ulcerations keep me up at night. It’s so painful and sometimes restricting me to be active on some days. Alhamdulillah though, I try to ignore it and occupy myself with lots of chats with mum and deep conversations with my Allah.    Rare diseases are difficult both physically and emotionally. I urge you to talk more about rare conditions and open up your spaces for each other to find comfort and strength.   •Follow @thefarahfdn A platform to advocate, voice and empower people living with autoimmune and chronic diseases.     #farahkhaleck #inspirelife #rarediseaseawareness #gettoknowmore #rarediseases #scleroderma #thefarahfdn #shareyourcolours #iwishiknew
#Scleroderma Face Changes Reel by @sheshutes_shescores - Scleroderma has changed my face quite a bit over the last several years….the changes on my face are pretty common among people with scleroderma. I sha
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@sheshutes_shescores
Scleroderma has changed my face quite a bit over the last several years….the changes on my face are pretty common among people with scleroderma. I share to educate and build community—-thank you for being here and listening. 💜SS
#Scleroderma Face Changes Reel by @drrmichelle - New diagnosis of Early Scleroderma today. #drmichellekoolaee #pasadenarheumatology #directcarerheumatology #autoimmunesupport #sclerodermaawareness
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@drrmichelle
New diagnosis of Early Scleroderma today. #drmichellekoolaee #pasadenarheumatology #directcarerheumatology #autoimmunesupport #sclerodermaawareness
#Scleroderma Face Changes Reel by @drtedlain - Check out this post from @sirdermzalot on linear morphea. In dermatology, understanding conditions like scleroderma and morphea is essential, as they
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@drtedlain
Check out this post from @sirdermzalot on linear morphea. In dermatology, understanding conditions like scleroderma and morphea is essential, as they can lead to significant skin changes such as thickening, hardening, and loss of elasticity. As healthcare professionals, it is our responsibility to support our patients by providing effective strategies to manage, maintain, and treat these complex skin conditions. . . . #linearmorphea #scleroderma #dermatologicconditions #dermatology #dermatologist
#Scleroderma Face Changes Reel by @thehealingrheum - Early signs of scleroderma can be subtle, but important to recognize - think Raynaud's, shiny skin, puffy hands. It's always best to stay informed and
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@thehealingrheum
Early signs of scleroderma can be subtle, but important to recognize – think Raynaud’s, shiny skin, puffy hands. It’s always best to stay informed and take preventative measures! 🩺 If you need help managing your autoimmune disease, don’t hesitate to reach out to The Healing Rheum. 📞 (818)696-8767 📧 info@thehealingrheum.com 📍Glendale, CA The information provided should not be used for diagnosing or treating a health problem or disease, and those seeking personal medical advice should consult with a licensed physician. #integrativerheumatology #integrativerheumatologist #inflammation #scleroderma #raynauds #puffyhands
#Scleroderma Face Changes Reel by @sirdermzalot - Linear morphea is a common form of localized scleroderma and it's the most common form in children! Unfortunately it can have devastating consequences
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@sirdermzalot
Linear morphea is a common form of localized scleroderma and it’s the most common form in children! Unfortunately it can have devastating consequences on the skin and soft tissues. It’s sad to see the bullying that occurs in patients with serious diagnoses! Many serious dermatologic diseases have an impact of quality of life! I love her confidence and it inspired me to make my video! #skin #beauty #skincare #skincaretips #skincarecommunity #skincareproducts #scottsdale #linearmorphea #morphea #scleroderma #autoimmune #autoimmuneawareness #autoimmunedisease #autoimmunediseases #autoimmunewellness #autoimmunewarrior #confidence
#Scleroderma Face Changes Reel by @emily__maryy - Two years ago, a dog bite changed my face && for a while, it changed how I saw myself. I was already navigating wrinkles in my early 30s… but adding
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@emily__maryy
Two years ago, a dog bite changed my face && for a while, it changed how I saw myself. I was already navigating wrinkles in my early 30s… but adding visible scarring felt overwhelming. Makeup didn’t sit the same. I avoided certain lighting. I’ve been focused on hiding instead of living. Healing hasn’t just been physical — it’s been emotional. Finding @olivedaofficial last year was a turning point for me. What stood out to me was that it’s waterless and powered by olive tree elixirs instead of diluted formulas. Not because it “fixed” me overnight, but because my skin finally felt supported. Over time, my scars looked softer, my texture smoother, and those early wrinkles didn’t feel so loud. But the biggest shift? Confidence. Showing up bare-faced. Not overanalyzing every photo, or using filters all the time.. Feeling comfortable in my own skin again. I’m using the @oliverosecosmetics no makeup line 😍 gives me a bare face look but the coverage I love! Shine babes shine! ✨ If you’re in a season where you don’t fully recognize yourself — give yourself grace. Healing takes time. 🤍 #OLIVETREEPEOPLEMARCH #SkinHealing #whyOliveda #30sSkin #fyp
#Scleroderma Face Changes Reel by @faceyogapilates - This is exactly what I had also realized, but my friend put it so clearly! Can you believe this was just last year?! Multiple surgeries throughout 202
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@faceyogapilates
This is exactly what I had also realized, but my friend put it so clearly! Can you believe this was just last year?! Multiple surgeries throughout 2023 because it did not heal well at all at first. So to the person who told me I looked 50 and pointed out the scar behind my ear… FaceYoga is my facelift. The scar is from the skin graft. And while the scar will always be there, you can beautiful even through your scars. Don’t let anyone tell you different. #faceyoga #facelift #faceexercise #skincancer #skingraft #scar #scarhealing
#Scleroderma Face Changes Reel by @upadhyaymedicalagency - Systemic sclerosis, also known as scleroderma, is a chronic autoimmune disease causing fibrosis (hardening) of the skin and internal organs (lungs, he
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@upadhyaymedicalagency
Systemic sclerosis, also known as scleroderma, is a chronic autoimmune disease causing fibrosis (hardening) of the skin and internal organs (lungs, heart, kidneys, GI tract) due to excess collagen, often starting with Raynaud's (finger color changes) and leading to swelling, skin thickening, and potential organ failure . It's categorized as limited (milder, below elbows/knees) or diffuse (widespread skin/organs) . While the exact cause is unknown, it involves immune system dysfunction, genetics, and environmental triggers, with prognosis varying by type, but lung/heart/kidney issues are major mortality risks . Key Characteristics & Symptoms Autoimmune: The immune system mistakenly attacks the body's own tissues. Fibrosis: Overproduction and buildup of collagen, making tissues hard. Vasculopathy: Damage to small blood vessels. Common Early Signs: Raynaud's phenomenon (fingers/toes turn white/blue), swollen hands/fingers, joint pain, heartburn. Progression: Skin tightens, spidery blood vessels (telangiectasias) appear, and internal organs can be affected.  Types of Systemic Sclerosis Limited SSc (lcSSc): Affects skin on face, hands, feet, lower legs; slower progression; can involve CREST syndrome (Calcinosis, Raynaud's, Esophageal dysmotility, Sclerodactyly, Telangiectasias). Diffuse SSc (dcSSc): Affects skin on trunk and limbs; rapid onset; higher risk of severe internal organ involvement. Organ Involvement & Complications Lungs: Pulmonary hypertension, fibrosis. Kidneys: Scleroderma renal crisis (sudden high blood pressure, kidney failure). Heart: Heart failure, arrhythmias. GI Tract: Difficulty swallowing (dysphagia), heartburn, motility issues.  Diagnosis & Management Diagnosis: Clinical signs, autoantibody tests (like ANA). Treatment: Focuses on managing symptoms and specific organ complications, using immunosuppressants, blood pressure drugs, etc., with ongoing monitoring.
#Scleroderma Face Changes Reel by @ctrl.skin - Sorry for the long video (it's been a while) Whilst I'm so grateful for where my skin is at in comparison to this time last year 🍅, I can't help but
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@ctrl.skin
Sorry for the long video (it’s been a while) Whilst I’m so grateful for where my skin is at in comparison to this time last year 🍅, I can’t help but feel depressed. I don’t want to use this space to complain, but I just wanted to share where I’m at right now. Everytime I try and live a little more, my skin ends up suffering. The damage that I’ve caused to my skin over two decades of applying steroid creams runs deep. The physical side to the illness is still very much present in my day to day, but I’m finding the mental side of the illness has been showing up a lot more lately. Sometimes it feels like I might just be posting my highlight reel here & it’s only because I’m posting when I have the energy. But I thought it was equally as important to share how I’m feeling now. Things are hard right now, but I’ve got a plan and I’ve got my support system. For those of you who are also feeling the weight of your chronic health issue, I hope you’re managing okay. I know with time we’ll get through this 💙 #topicalsteroidwithdrawal #tsw #ctrlskin #healingjourney #healing

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