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Трендовые Reels

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#Endnf Reel by @childrenstumor - 🎥 Have you ever wondered: What is NF1? It's short for neurofibromatosis type 1, but what IS it? You're not alone - and we're here to help. In the Bi
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@childrenstumor
🎥 Have you ever wondered: What is NF1? It's short for neurofibromatosis type 1, but what IS it? You’re not alone — and we’re here to help. In the Big Questions about NF series, Kate Kelts, RN, BSN, breaks down key questions and concerns that NF patients and families ask most often. Missed the previous episodes? Click our link in bio to check out our YouTube channel! #EndNF
#Endnf Reel by @mckinnongalloway (verified account) - Thank you for taking the time to watch and share. 💙 💚 together we can #endnf 🤟 While i fight for myself, my passion is to fight for those who hav
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@mckinnongalloway
Thank you for taking the time to watch and share. 💙 💚 together we can #endnf 🤟 While i fight for myself, my passion is to fight for those who have lost their life along the way to honor heir memory and for the kids who are too young to speak for themselves. NF2 is a rare genetic disorder where tumors grow on any nerve throughout the body. And there is no cure. It’s extremely hard. But with your help. We can raise awareness that will ultimately lead to a cure!
#Endnf Reel by @mommer_do_run (verified account) - It's been a really tough year.. many silent battles fought and are still in process. But through it all, I kept showing up for myself to show up for
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@mommer_do_run
It’s been a really tough year.. many silent battles fought and are still in process. But through it all, I kept showing up for myself to show up for my family and loved ones. As many know, my son was diagnosed with a brain tumor needing urgent removal in June. It was earth shattering. The only way was through it. And we stuck together and overcame. My son is the true picture of perseverance. He went on to run and complete a Spartan race just 2 months later after having to learn to stand and walk with assistance. Running gave me a space for processing, prayer and healing. And through the training, I was able to complete another marathon running my fastest time yet! Never let your setbacks define you! #runnersofinstagram #runnersofig #runnersofinsta #runningcommunity #runner #running #runnerthings #motherrunner #motherunner #runninginspiration #runningmotivation #endnf #childrenstumorfoundation #nfendurance
#Endnf Reel by @doergek (verified account) - Neurofibromatosis took our daughter Penny's life. But it did not take our mission. 🦋 I was supposed to be on Capitol Hill tomorrow and Tuesday advoc
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@doergek
Neurofibromatosis took our daughter Penny’s life. But it did not take our mission. 🦋 I was supposed to be on Capitol Hill tomorrow and Tuesday advocating alongside other NF families. Because of the snowstorm, I won’t be there in person- but the urgency doesn’t pause. Here’s the simple ask: Please support $25 million in funding for Fiscal Year 2027 for the Neurofibromatosis Research Program (NFRP), funded under the Congressionally Directed Medical Research Program (CDMRP). This program has already driven groundbreaking discoveries, advanced treatments, and supported clinical trials nationwide. Continued funding means continued progress- and hope- for families like ours. If you know a Congressman or Senator- especially here in New York- please reach out. Make the call. Send the email. Use your voice. We will find a cure. Together. 🇺🇸 @pennysflight @nfnetwork #Pennysflight #CureNF #NFStrong #TurningPainIntoPurpose #WingspanNotLifespan
#Endnf Reel by @joyforgeorgia - If keeping up with trends means I get to keep spreading awareness for her rare genetic disorder then put me in, coach. May is Neurofibromatosis Awar
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@joyforgeorgia
If keeping up with trends means I get to keep spreading awareness for her rare genetic disorder then put me in, coach. May is Neurofibromatosis Awareness Month. NF is a rare genetic disorder affecting 1 in 2000 people, yet it’s widely unheard of. It’s the *most common* rare disorder that affects all genders and races equally. NF causes tumors to form along nerves throughout the body, it is progressive and there is currently no cure. But you can help us change this by engaging with our content, and others who are spreading awareness for Neurofibromatosis💙 Have you heard of NF before? . . . . #nf1 #endnf #neurofibromatosis #makenfvisible #nf2 #rarediseaseawareness #raredisease #rarediseases #braintumor #braintumorawareness #braintumorssuck #raregeneticdisorder #gograyinmay
#Endnf Reel by @lillypulitzer (verified account) - In celebration of a life that radiated joy, color, and courage, we're honored to introduce our newest print in partnership with @pennysflight. Inspir
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@lillypulitzer
In celebration of a life that radiated joy, color, and courage, we’re honored to introduce our newest print in partnership with @pennysflight. Inspired by the beautiful spirit of Penny Doerge, who lived with Neurofibromatosis (NF) since infancy, this pink and white toile is filled with sunshine, butterflies, and the optimism she carried through every moment. It’s a print that embodies Penny’s legacy and the Foundation’s mission to help others do the same: spread your wings, shine your light. Together, we hope to spark confidence, fund critical research, and continue lifting up those affected by NF and related disorders. Help us #ENDNF, and be a butterfly. 🦋 Tap the link in bio to learn more and shop the collection.
#Endnf Reel by @pennysflight - 🦋"Happiness, not in another place but this place… not for another hour, but this hour." - Walt Whitman 🦋 Penny never waited for "someday." She live
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@pennysflight
🦋”Happiness, not in another place but this place… not for another hour, but this hour.” – Walt Whitman 🦋 Penny never waited for “someday.” She lived each day like it was the special occasion. She didn’t need perfect weather or a big plan — just the people she loved, a moment to laugh, and her big-open heart. How often do we rush through our days, chasing the next thing, thinking joy lives somewhere ahead of us? Penny reminds us it’s here. Right now. In this minute. This week, pause. Look around. Live like Penny and let yourself sink fully into this present moment — because it’s the only one guaranteed. Celebrate this life. This hour. This gift. 🦋 #mondaymotiviation #famjam2025 #LiveLikePenny #PositivelyPenny #PennysFlight #SpreadYourWings #ShineYourLight #EndNF #NFResearch #PDAA
#Endnf Reel by @wrappedbycarrie (verified account) - A very special wrap today in honor of @pennysflight, an organization dedicated to research for Neurofibromatosis, a condition that causes tumors to fo
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@wrappedbycarrie
A very special wrap today in honor of @pennysflight, an organization dedicated to research for Neurofibromatosis, a condition that causes tumors to form in the brain, spinal cord and nerves. This tragically took the life of my young cousin, as well as that of young Penny Doerge. When I saw the fundraising collab with @lillypulitzer, it was an immediate YES to making a purchase. The beautiful pink pattern on the cross-body bag and hat is quintessential Lilly. Looking forward to gifting the bag to a very special mom and I am selfishly keeping the cap. ☺️ Selected my most “LillyP-esque” paper and channeled my inner @staceygordondoesdesign and Cassie from @wirrwarrwraps to create this fun and vibrant wrap with a signature WirrWarrWraps messy bow. Would love for everyone to consider a purchase from the Penny’s Flight collection at Lilly Pulitzer (or direct donation) to help #ENDNF! 🦋
#Endnf Reel by @kikiandluluco - Kiki + Lulu is teaming up with @pennysflight for a very special drop near and dear to our hearts 💕 next Tuesday @ 10am CST! All proceeds will be dona
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@kikiandluluco
Kiki + Lulu is teaming up with @pennysflight for a very special drop near and dear to our hearts 💕 next Tuesday @ 10am CST! All proceeds will be donated to Penny’s Flight Foundation to help #endNF 🦋💙💚
#Endnf Reel by @gilbertfamilyfoundation (verified account) - We are proud to support cutting-edge medical research for #neurofibromatosis like our Brain Tumor Initiative (BTI) and Vision Restoration Initiative (
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@gilbertfamilyfoundation
We are proud to support cutting-edge medical research for #neurofibromatosis like our Brain Tumor Initiative (BTI) and Vision Restoration Initiative (VRI), both of which will help develop viable treatments for patients living with #NF1. Together, we're collaborating to accelerate a cure. #NFAwareness #NFAwarenessMonth #EndNF
#Endnf Reel by @nfxdetroit (verified account) - Organoids are lab-grown mini human organs that exist in a dish outside of the body. We are excited about the possibilities this tool provides for test
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@nfxdetroit
Organoids are lab-grown mini human organs that exist in a dish outside of the body. We are excited about the possibilities this tool provides for testing and drug discovery for #NF treatments. #nfawareness #nfawarenessmonth #endnf
#Endnf Reel by @superandoaneurofibromatose (verified account) - ✔️ 5 Fatos sobre Neurofibromatose - A neurofibromatose é causada por alterações genéticas em alguns genes, especialmente no cromossoma 17 e cromossom
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@superandoaneurofibromatose
✔️ 5 Fatos sobre Neurofibromatose - A neurofibromatose é causada por alterações genéticas em alguns genes, especialmente no cromossoma 17 e cromossoma 22. Além disso, os casos raros de Schwannomatose parecem ser causados por alterações em genes mais específicos como o SMARCB1 e o LZTR. Todos os genes alterados são importantes na inibição da produção de tumores e, por isso, quando estão afetados levam ao surgimento dos tumores característicos da neurofibromatose. - Embora a maioria dos casos diagnosticados sejam passados de pais para filhos, também existem pessoas que podem nunca ter tido qualquer caso da doença na família. __________________________ #superandoaneurofibromatose #curitiba #brasil #fevereiro #conscientizacao #genetica #cura #tratamento #cirurgia #neurofibromatose #neurofibromatositype1 #nf1 #endnf #doencasraras #raros #juntossomosmaisfortes #manchasnapele #manchascafecomleite #neurofibroma #tumores #tumor #saude #tratamento #razoesparaacreditar #compartilhe #vocesabia #informação #girl

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Огромная коллекция #Endnf в Instagram представляет самые привлекательные видео сегодня. Контент от @mckinnongalloway, @superandoaneurofibromatose and @lillypulitzer и других креативных производителей достиг 349K публикаций по всему миру.

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