#Mogadawarenessmonth

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#Mogadawarenessmonth Reel by @ucbglobal (verified account) - The story of Andrew is one that many people living with #MOGAD will recognise. This #MOGADAwarenessMonth, we're sharing stories like his to help raise
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@ucbglobal
The story of Andrew is one that many people living with #MOGAD will recognise. This #MOGADAwarenessMonth, we’re sharing stories like his to help raise awareness and as a reminder that every voice matters.⁣ ⁣ #MOGAD is a rare condition that can introduce long-term uncertainty into everyday life. The possibility of a relapse that can prevent people from carrying out regular activities is a reality that many people living with this #raredisease must factor into their daily life.⁣ ⁣ Together, we can support each other and make a difference. #MOGADvocacy
#Mogadawarenessmonth Reel by @wearesrna - This #MOGADAwarenessMonth, share your story like Caitlin! By spreading awareness, you help educate, advocate, and empower those in the rare neuroimmun
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@wearesrna
This #MOGADAwarenessMonth, share your story like Caitlin! By spreading awareness, you help educate, advocate, and empower those in the rare neuroimmune disorders community. Record a video, write for our blog, speak at an event, and more. Get involved today through the link in our bio.
#Mogadawarenessmonth Reel by @probablygenetic - Myelin Oligodendrocyte Glycoprotein Antibody-Associated Disease (MOGAD) is a rare autoimmune condition in which the body mistakenly attacks myelin, ca
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@probablygenetic
Myelin Oligodendrocyte Glycoprotein Antibody-Associated Disease (MOGAD) is a rare autoimmune condition in which the body mistakenly attacks myelin, causing inflammation in the brain, spinal cord, and optic nerves. April is MOGAD awareness month - so we’re taking a moment on this final day to highlight and educate on the condition that many people are living with and may not even know it yet. Sample patient profile Individuals commonly experience the onset of MOGAD between childhood and early adulthood, with symptom onset commonly happening abruptly with symptoms progressing quickly. Symptoms include: Inflammation of the optic nerve: - Vision loss in one or both eyes - Eye pain that worsens with eye movement - Eye pain mistaken as a headache Spinal chord inflammation: - Limb weakness - Muscle stiffness - Paralysis - Changes in bowel and bladder function Brain and spinal cord inflammation: - Overall feeling of weakness - Unsteady walk and confusion Other: - Seizures - Fevers If you think you have MOGAD or do have MOGAD - shoot us a DM or a comment. #mogadawarenessmonth #mogadawareness
#Mogadawarenessmonth Reel by @themogproject - We are stronger together, especially during #MOGADAwarenessMonth! Watch this brief, yet inspirational video of Melissa, one of our children's ambassa
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@themogproject
We are stronger together, especially during #MOGADAwarenessMonth! Watch this brief, yet inspirational video of Melissa, one of our children's ambassadors. 🩷🩵 And learn more about our Children's Ambassadors Program at mogproject.org/childrens-ambassadors
#Mogadawarenessmonth Reel by @chronicloveclub (verified account) - Have you ever heard of MOGAD (Myelin Oligodendrocyte Glycoprotein Antibody Disease)? Neither had we! It's a relatively newly discovered disease and to
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@chronicloveclub
Have you ever heard of MOGAD (Myelin Oligodendrocyte Glycoprotein Antibody Disease)? Neither had we! It’s a relatively newly discovered disease and today, during MOGAD Awareness Month, we’re lucky to have Caitlin (who lives with MOGAD) here with us to tell us all about it. Drop Caitlin some love for taking her time to spread awareness! 💛 You can follow Caitlin’s journey at @caitlinjoburke 🫶 . . . . . . #chronicloveclub #chronicillness #mogad #Myelinoligodendrocyteglycoproteinantibodydisease #mogadawarenessmonth #chronicfatigue #ms #transversemyelitis #myelitis #autoimmunedisease #autoimmunediseaseawareness #autoimmunediseasewarrior #chronicillnessawareness #chronicillnesssupport #chronicillnesscommunity #chronicillnesswarrior #invisibleillness #raredisease #rarediseaseawareness #invisibleillnessawareness #spoonie #spooniesupport #chronicillnesslife #chronicallyill #disabilityawareness #invisibledisability
#Mogadawarenessmonth Reel by @theneuroimmunologyclinic - Join us for another #MOGMinute with Michael Levy, MD, PhD as part of a #MOGADAwarenessMonth, a collaboration between The Neuroimmunology Clinic & Rese
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@theneuroimmunologyclinic
Join us for another #MOGMinute with Michael Levy, MD, PhD as part of a #MOGADAwarenessMonth, a collaboration between The Neuroimmunology Clinic & Research Laboratory at Mass General Hospital and @themogproject In this video, Dr. Levy talks about the significance of the MOG Antibody titer level. #theneuroimmunologyclinic #themogproject #MGH #Harvard #neurology #raredisease #nonprofit #MOGAD #MOG #support #caregiver #rare #disease #healthcare #patientexperience #advocacy #advocates #volunteer #awareness
#Mogadawarenessmonth Reel by @fedrann_oficial - #Repost @themogproject ... We are stronger together, especially during #MOGADAwarenessMonth! Watch this brief, yet inspirational video of Melissa, on
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@fedrann_oficial
#Repost @themogproject ... We are stronger together, especially during #MOGADAwarenessMonth! Watch this brief, yet inspirational video of Melissa, one of our children's ambassadors. 🩷🩵 And learn more about our Children's Ambassadors Program at mogproject.org/childrens-ambassadors
#Mogadawarenessmonth Reel by @wearesrna - Becca was diagnosed with MOG antibody disease 15 years ago. Her journey-marked by resilience, setbacks, and strength-reflects the reality of living w
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@wearesrna
Becca was diagnosed with MOG antibody disease 15 years ago. Her journey—marked by resilience, setbacks, and strength—reflects the reality of living with a rare neuroimmune disorder. 🔸 MOGAD affects the central nervous system and can lead to vision loss, mobility challenges, and more. Many people have never heard of it—until it changes their life. This #MOGADAwarenessMonth, we’re sharing stories like Becca’s to shed light on what it really means to live with MOGAD. 🧡 Watch and share her story.
#Mogadawarenessmonth Reel by @ucbglobal (verified account) - April marks #MOGADAwarenessMonth! We invite you to join us in spreading the word about myelin oligodendrocyte glycoprotein antibody-associated disease
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@ucbglobal
April marks #MOGADAwarenessMonth! We invite you to join us in spreading the word about myelin oligodendrocyte glycoprotein antibody-associated disease (#MOGAD), a rare, often invisible neurological condition. Hear more from Jen about how the unpredictable, fluctuating nature of her symptoms creates challenges in planning for her future. We've been working closely with the MOGAD community to truly understand the personal impact of this disease. By hearing their stories, we learn about the daily challenges and victories they experience. Our commitment is to amplify their voices, create a supportive and empathetic community, and turn knowledge into power!
#Mogadawarenessmonth Reel by @themogproject - 🩵🩷 MOGAD Voices (in collaboration with @wearesrna) Angela is a regional delegate for The MOG Project in Brazil and a dedicated advocate for individ
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@themogproject
🩵🩷 MOGAD Voices (in collaboration with @wearesrna) Angela is a regional delegate for The MOG Project in Brazil and a dedicated advocate for individuals and families affected by MOGAD. Her advocacy journey began through her daughter Melissa, who was diagnosed with MOGAD in April 2025. "My daughter slept well, but woke up without seeing. It was a devastating feeling as a mother." Angela encourages that if you or your family member is going through something similar, insist on answers and don't remain quiet. Every minute counts. 🔗 Want to better understand MOGAD? Access our MOGAD Learning Center for information about this disease: mogproject.org/mogad-learning-center/ 💬 And let us know in the comments: What has helped you advocate for yourself? #MOGAD #MOGADAwarenessMonth #MOGADVoices #RareNeuroimmune #RareDisease
#Mogadawarenessmonth Reel by @wearesrna - Becca was diagnosed with MOG antibody disease 16 years ago. Her journey-marked by resilience, setbacks, and strength-reflects the reality of living w
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@wearesrna
Becca was diagnosed with MOG antibody disease 16 years ago. Her journey—marked by resilience, setbacks, and strength—reflects the reality of living with a rare neuroimmune disorder. 🔸 MOGAD affects the central nervous system and can lead to vision loss, mobility challenges, and more. Many people have never heard of it—until it changes their life. This #MOGADAwarenessMonth, we’re sharing stories like Becca’s to shed light on what it really means to live with MOGAD. 🧡 Watch and share her story. #MOGADAwarenessMonth #MOGAntibodyDisease #MOGAD #ThisIsMOGAD
#Mogadawarenessmonth Reel by @ucbglobal (verified account) - What began as tingling and coldness in Tim's legs, feet, and hands eventually led to difficulty in standing and walking, brain lesions, and a diagnosi
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@ucbglobal
What began as tingling and coldness in Tim's legs, feet, and hands eventually led to difficulty in standing and walking, brain lesions, and a diagnosis of myelin oligodendrocyte glycoprotein antibody-associated disease (#MOGAD), a debilitating condition that impacted his career and life. Did you know there are approximately 1.3-2.5 per 100,000 people worldwide who, like Tim, are affected by MOGAD? This #MOGADAwarenessMonth, we stand with Tim and everyone living with MOGAD. Let's raise awareness and support them - together, we can make a difference.

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