#Autonomicdysfunction

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#Autonomicdysfunction Reel by @carolina_functional_neurology (verified account) - When your autonomic nervous system is working properly, your brain and body communicate seamlessly. Your brain processes movement, balance, and senso
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@carolina_functional_neurology
When your autonomic nervous system is working properly, your brain and body communicate seamlessly. Your brain processes movement, balance, and sensory input in real time, allowing you to spin, move, and stabilize without dizziness. But when the autonomic nervous system is dysregulated, these same movements can trigger symptoms. “I feel like I’m walking on a boat,” is something we commonly hear from patients, especially those with POTS, concussion and vestibular disorders. The good news? We can identify why the nervous system isn’t regulating properly and create a personalized plan to help restore function. #potssyndrome #dysautonomia #autonomicdysfunction #posturalorthostatictachycardiasyndrome
#Autonomicdysfunction Reel by @dysautonomiafact - Cre: @pallisons_journey Dysautonomia is more than dizziness. There are many forms of Dysautonomia. These include •generalized autonomic dysfunction •
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@dysautonomiafact
Cre: @pallisons_journey Dysautonomia is more than dizziness. There are many forms of Dysautonomia. These include •generalized autonomic dysfunction •autonomic neuropathy •POTS •SVT •IST •Autoimmune autonomic gangliopathy •and more All of these conditions cause an array of symptoms. And many times Dysautonomia is the culprit for many comorbid complications. I have generalized autonomic dysfunction and POTS. These have caused many other issues as well. I have it due to complex hereditary spastic paraplegia. Dysautonomia has caused me to be in the hospital a lot. I also have a gtube due to Dysautonomia. Dysautonomia means the autonomic nerves are malfunctioning. This means everything that happens involuntarily (breathing, digestion, heart rate, etc) is impacted. . . . #dysautonomia
#Autonomicdysfunction Reel by @mimimythen - how I treat/manage my POTS symptoms at home!!! for my fellow potsies 🤍🧂 hope this helps someone #potssyndrome #autonomicdysfunction #dysautonomia #p
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@mimimythen
how I treat/manage my POTS symptoms at home!!! for my fellow potsies 🤍🧂 hope this helps someone #potssyndrome #autonomicdysfunction #dysautonomia #potsawareness #vasovagalsyncope #chronicillness #potstreatment #potssymptoms @saltstick @vitassium @buoy @_bloomofyouth_ @absorb.more @sajewellness @drinklmnt
#Autonomicdysfunction Reel by @spoonietedtalk - I hate the feeling of heaviness in my legs when this happens 🤧 oh and don't get me started on how this make my feet burn 🔥 . . . . . #posturalortho
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@spoonietedtalk
I hate the feeling of heaviness in my legs when this happens 🤧 oh and don’t get me started on how this make my feet burn 🔥 . . . . . #posturalorthostatictachycardiasyndrome #pots #potsyndrome #potsyndromeindia #dysautonomia #dysautonomiaindia #autonomicdysfunction #potsie #bloodpooling #orthostatictachycardia #tachycardia #chronicillness #invisibledisability #reels #explore #trending #redfeet . . . . . [POTS, POTSyndrome, POTS India, POTS disease, Postural Orthostatic Tachycardia Syndrome, Dysautonomia, Autonomic Dysfunction, Dysautonomia India, Potsie, Spoonie, Chronically Ill, Blood Fooling, Red Feet, warm feet, burning feet, tachycardia]
#Autonomicdysfunction Reel by @pallisons_journey - It's been a long journey. •ps it's not vaccine injury, covid, or tick borne. It's an ultra rare complex hereditary spastic paraplegia. At first we we
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@pallisons_journey
It’s been a long journey. •ps it’s not vaccine injury, covid, or tick borne. It’s an ultra rare complex hereditary spastic paraplegia. At first we were told it was a sprained ankle. But it was far more. It was a rare, progressive neurodegenerative disease. It is aggressive. It takes so much. I went from walking- to being a full time wheelchair user in only 1 1/2 years. It has taken so much. It affects my arms, my core, my head, my legs, my fine motor skills. It causes autonomic dysfunction. It has weakened my swallow. Wreaked havoc on my body. It will continue to progress. There is no cure. We have tried almost every treatment. Doctors have said there isn’t much left. We have done Botox, baclofen, muscle relaxers, DBS, Parkinson’s drugs, AFO braces, PT, OT, you name it. It has not been as effective as we had hoped. The baclofen has reduced the spasticity some. But not enough. There are only a few things left. Switching up meds, adding meds, changing Botox patterns. We have done those but we will continue trying. We are also being sent to a tone management clinic. They will evaluate me for SDR or baclofen pump. We hope I’m a candidate. We need this to work. In the past and current I have seen so many doctors. Hematology, Neurology, Cardiology, genetics, pulmonology, orthopedics, physiatry, neurosurgery, GI, rheumatology, psychiatry, optometrist, general surgery. You name it. For reference by neurology, I mean I’ve seen 7 and soon to be 8 neurologists. 8 neurologists who spent time (well one didn’t) finding what was going on with me. They spent time hoping these treatments would work. They’ve adjusted things. I’ve done a research study. I’ve had 11 MRIs. I’ve had 12 surgeries. In 2 years I’ve had 8 sets of AFOs. I’ve been to the ER countless times. Dec 2023- Dec 2024 I was hospitalized 4 times. I got pneumonia 3 times. We will continue to fight. We will continue to live life to the fullest. We will make the most of things #Fight #treatment #answers #disability #medicallycomplex #live #life #hospital #surgery #raredisease
#Autonomicdysfunction Reel by @chronicallypersevering (verified account) - Cause you know I love you, Rituxan! A few weeks ago I traveled out to the Mayo Clinic in Arizona to get my first rituxan infusion. My doctors believe
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@chronicallypersevering
Cause you know I love you, Rituxan! A few weeks ago I traveled out to the Mayo Clinic in Arizona to get my first rituxan infusion. My doctors believed this could help me immensely and together we had some big dreams. Rituxan is a type of immunotherapy used to treat certain types of cancer and some autoimmune conditions. It works a little like Space Invaders. Rituxan enters your body and targets specific cells called b-cells(a type of white blood cell) and depleting them. These cells in autoimmune disorders are thought to cause inflammation, create some auto-antibodies, and more. For me personally we had BIG dreams. By depleting these cells, we hoped we could suppress the autoimmune activity in my body caused by a SLEW of conditions including Sjögren’s syndrome, autoimmune autonomic neuropathy, lupus, Hashimoto’s thyroiditis, ROHHAD, a clotting disorder, and more. These autoimmune conditions impact and cause other disorders like not allowing my g.i. tract to absorb potassium to help my hypokalemic periodic paralysis, creating severe gastroparesis, severe autonomic dysfunction and more. Some of the things we hoped rituxan would do were: -improve autonomic dysfunction -suppress autoimmune activity -increase energy -lessen Sjögren’s dryness -reduce inflammation -improve g.i. symptoms -improve absorption So far it has helped with a lot of those! It has allowed my g.i. tract to start working, improving my gastroparesis and absorption. In turn this meant I could start to absorb my potassium, my hypokalemic periodic paralysis is starting to improve, and I’m taking my first steps in years! Everyday I wake up to a body changing from rituxan and everyday I have new firsts and improvements! Rituxan is a potent immunosuppressive with major risks, side effects, and is not a first line treatment, but I love it in every single way!
#Autonomicdysfunction Reel by @drzacspiritos (verified account) - "Why Can't My POTS Patient Sleep?" Insomnia is extremely common in patients with POTS-and it's not the usual kind that responds to a little melatonin
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@drzacspiritos
“Why Can’t My POTS Patient Sleep?” Insomnia is extremely common in patients with POTS—and it’s not the usual kind that responds to a little melatonin and chamomile tea. Here’s the issue: many patients with POTS experience chronic sympathetic overdrive, especially in the evening hours when the body is supposed to be winding down. Instead of transitioning smoothly into parasympathetic “rest and digest” mode, their autonomic nervous system stays stuck in high gear—wired, anxious, heart racing. It’s not insomnia due to poor habits. It’s a nervous system that forgot how to slow down. This explains why traditional sleep strategies—melatonin, warm baths, even sleep hygiene—often fail. These methods don’t address the root cause: dysregulated autonomic tone. So what actually helps? Managing insomnia in POTS means targeting the overactive sympathetic nervous system head-on. Effective strategies include: • Non-pharmacologic vagal activation: like slow-paced diaphragmatic breathing, yoga nidra, and biofeedback • Low-dose beta blockers or clonidine at night (in some cases) to blunt sympathetic tone • Cognitive behavioral therapy for insomnia (CBT-I)—modified for patients with autonomic dysfunction • Supplements like magnesium glycinate, L-theanine, or CBD (in selected patients) that promote parasympathetic activity The key takeaway? If your POTS patient isn’t sleeping, stop reaching for the usual toolbox. This isn’t just insomnia—it’s autonomic insomnia, and it needs a completely different strategy. #pots #potssyndrome #potsawareness #posturalorthostatictachycardiasyndrome #dysautonomia #insomnia #insomniaproblems #mcas #mastcellactivationdisorder #mastcellactivationsyndrome #mastcell #eds #heds #ehlersdanlos #ehlersdanlossyndrome #hypermobility
#Autonomicdysfunction Reel by @wellnessethic - Most heart tests only capture a few seconds of data. But what if your symptoms happen randomly-at night, after eating, or when you're just sitting sti
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@wellnessethic
Most heart tests only capture a few seconds of data. But what if your symptoms happen randomly—at night, after eating, or when you’re just sitting still? That’s where a Holter monitor comes in. Unlike a standard EKG, a Holter monitor tracks your heart’s electrical activity 24/7 for days or even weeks. This gives doctors a bigger picture of your heart’s function and helps detect issues that might be missed in a short office visit. 💡 What Can a Holter Monitor Detect? A healthy heart adjusts its rhythm based on your body’s needs—speeding up with activity, slowing down at rest. A Holter monitor can spot irregularities in this process, including: ✔️ Tachycardia (fast heart rate) – Like Inappropriate Sinus Tachycardia (IST) or POTS, where the heart beats too fast at rest or with minimal exertion. ✔️ Bradycardia (slow heart rate) – When the heart doesn’t beat fast enough to circulate blood efficiently. ✔️ Arrhythmias (irregular heart rhythms) – Such as AFib (Atrial Fibrillation), SVT (Supraventricular Tachycardia), or skipped beats (PVCs & PACs). ✔️ Heart rate variability issues – Which can indicate dysautonomia, nervous system dysfunction, or problems with blood flow regulation. 🩺 Who Might Need One? Doctors may order a Holter monitor for anyone experiencing unexplained symptoms like: 🔹 Heart palpitations (fluttering, pounding, or skipping beats) 🔹 Dizziness, fainting, or lightheadedness 🔹 Unexplained shortness of breath 🔹 Fatigue or exercise intolerance 🔹 Suspected autonomic dysfunction (like IST or POTS) 🔬 How It Works: The Science Behind the Test Your heart’s electrical system controls its rhythm. The sinus node (SA node) in the right atrium acts as the heart’s natural pacemaker, sending signals that cause the heart to beat. A Holter monitor records every single electrical impulse over time, helping doctors determine if those signals are too fast, too slow, or irregular. It’s especially useful for conditions where the heart is responding inappropriately to normal activities—like IST, where the sinus node fires too quickly, even at rest.
#Autonomicdysfunction Reel by @claritybrainandbodyclinic - Just because you can't see it doesn't mean it's not there. Dizziness. Tunnel vision. Crushing fatigue. Brain fog that makes even basic task feel imp
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@claritybrainandbodyclinic
Just because you can’t see it doesn’t mean it’s not there. Dizziness. Tunnel vision. Crushing fatigue. Brain fog that makes even basic task feel impossible. To the outside world, you may look fine, but your nervous system is fighting hard just to stay upright. 💡Postal orthostatic tachycardia syndrome (POTS) is a form of dysautonomia (a disorder of the autonomic nervous system) and often goes misunderstood or dismissed because the symptoms are often invisible. 🫶🏻But invisible doesn’t mean imaginary. These symptoms can deeply affect quality of life, and they deserve to be taken seriously. 👉🏻 Follow for more education on POTS, autonomic dysfunction, and brain-based care that looks at all the symptoms both visible and invisible.
#Autonomicdysfunction Reel by @berneruppercervical (verified account) - Since 2020-21 there has been a rise in dizziness and other autonomic dysfunction cases. What role can the cranial cervical junction play in this? Com
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@berneruppercervical
Since 2020-21 there has been a rise in dizziness and other autonomic dysfunction cases. What role can the cranial cervical junction play in this? Comment “LONG” for details #postviralillness #anxietyrelieftips
#Autonomicdysfunction Reel by @ehlers.danlos (verified account) - Did you know there are four types of hypermobility spectrum disorders (HSD), based on the type of joint hypermobility present?⁠ ⁠ 1. Generalized HSD (
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@ehlers.danlos
Did you know there are four types of hypermobility spectrum disorders (HSD), based on the type of joint hypermobility present?⁠ ⁠ 1. Generalized HSD (G-HSD)⁠ 2. Peripheral HSD (P-HSD)⁠ 3. Localized HSD (L-HSD)⁠ 4. Historical HSD (H-HSD)⁠ ⁠ Hypermobility spectrum disorders are connective tissue disorders that cause joint hypermobility, instability, injury, and pain. Other problems such as fatigue, headaches, GI problems, and autonomic dysfunction are often seen as part of HSD.⁠ ⁠ The hypermobility spectrum disorders occur when a person has symptomatic joint hypermobility that cannot be explained by other conditions, including types of Ehlers-Danlos syndromes. A person with HSD may have joint instability as their only concern or may have other medical issues as well.⁠ ⁠ 🔗Learn more about HSD at the link in our bio. There, you can also watch "Signs You May Have HSD" with @dr.clairfrancomano ⁠ ⁠
#Autonomicdysfunction Reel by @drzacspiritos (verified account) - She'd been battling chronic, challenging constipation for years - and no one could figure out why. That is, until we talked about her episodes of raci
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@drzacspiritos
She’d been battling chronic, challenging constipation for years — and no one could figure out why. That is, until we talked about her episodes of racing heart and palpitations. 💡 That’s when the lightbulb went off: dysautonomia. This subtle connection changed everything. Instead of stacking laxatives, we shifted our focus to treating the underlying autonomic dysfunction and using pro-motility agents — which support the actual cause of her constipation: slow gut transit. When we treat the why, not just the what, things start to move. #pots #potssyndrome #potsawareness #posturalorthostatictachycardiasyndrome #heds #hypermobility #ehlersdanlos #ehlersdanlossyndrome #constipation #constipationrelief #mcas #mastcellactivationdisorder #mastcellactivationsyndrome #gastroparesis

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