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PPPPMS tour is here. Don't miss out on a peak school experience - sign up your tweens for next school year! #peak
@ppmspride
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MU💜 March’s Fundraiser of the Month 💜
Christina took on her very first half marathon to honour her dad, who lives with progressive MS. From fundraising through winter training to creating a children’s book inspired by their journey, Christina is making a difference in so many ways.
👉 Tap the link in bio to read the full blog.
#FundraiserOfTheMonth #TeamPurple #MSUK #PPMS
@multiplesclerosis_uk
477
STPPMS is not RRMS.
Why do I focus on the mental and emotional side of life with MS? Because after 7 years of strict diet and lifestyle changes, not one percent of my physical immobility has reversed. And honestly—I don’t know if it ever will.
But what I do know is this: every major flare and mobility shift I’ve had was triggered by stress and not living authentically.
So now, my focus is different.
Nervous system regulation + radical authenticity = my best shot at stability—and maybe even healing.
And even if healing doesn’t look the way I once imagined…
I can still live a vibrant, empowered life by learning how to shift my mindset.
To MS coaches: please don’t assume your method works for every type of MS.
And to any fellow PPMSer who’s seen mobility improve—DM me. I want to hear your story!
#overcomingmyself #multiplesclerosis #mindset #healingjourney #ppms #foodismedicine
@steph.juststeph
2.9K
APRebuilding the ability to stand, gaining control over spasticity and going from strength to strength on our Remote Support programme… can’t wait to see what Ashley achieves next week!
Don’t believe what you’re told about Multiple Sclerosis.
#multiplesclerosisawareness #multiplesclerosis #multiplesclerosisfighter #apexneuro #uk #neufit #neubie #neubietherapy #neubietherapyuk #ppms #rrms
@apexneuro
4.4K
__These last 24 hours have been a whirlwind of emotions.
I woke up yesterday feeling—
Anxious—about this procedure; about life at 39; about all the changes to come; about EVERYTHING.
Embarrassed—having to admit and show the world my disability while asking for help was quite literally the hardest thing for me.
Terrified—if you know me, you KNOW needles and blood are not for me. *YES I’M COVERED IN TATTOOS AND I SOBBED DURING EACH ONE! I’m a gangster and softie, LET ME LIVE!
But as the day went on and I was ACTUALLY showered with so much love and support I began to realize—
Anytime I’m anxious about something, when it’s all said and done I got myself worked up and overthought things for nothing. I’m a girl, it’s what we do!
Admitting I need assistance is a sign of strength, not weakness. I was too afraid to burden others and feared rejection. I forgot how truly fortunate I am to be so loved.
I’m terrified of everything. Bugs. Pain. Being Kidnapped. Public Speaking. The Ocean. But it’s NEVER stopped me from living the beautiful life I live and coming out on top—EVERY 👏🏽 DAMN 👏🏽 TIME 👏🏽
My gratitude is perpetual. I owe y’all everything.
🧡🙏🏽✨
P.S. This clip shows how I get around when the pain is high and the distance is far. I wouldn’t be where I am today without this man.
#ppms #ms #multiplesclerosis #fighter #gofundme #grateful #love
@__krystinamarie
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UP🧠 Understanding Primary Progressive Multiple Sclerosis (PPMS)
Unlike relapsing forms of MS, PPMS involves a steady progression of symptoms from the start — without distinct relapses or remissions.
It’s caused by gradual nerve damage due to ongoing demyelination in the central nervous system, leading to slower movements, weakness, and balance issues.
💡 Every type of MS tells a different story — PPMS shows how subtle, continuous change can reshape how the brain and body connect.
#MultipleSclerosis #PPMS #Neuroscience #Neuropsychology #BrainHealth #Demyelination #Neurology #PsychologyStudents #NeuroDisorders #PsychologyFacts #UPSEducation
@upseducation
1.5K
CH✨ “PPMS is part of my story, not the end of it.” #multiplesclerosis #mshealing #mswarrior
@chass_mshealing
10.8K
MSOliver’s MS Letter. 💌
Oliver is 13, and cares for his mum who has primary progressive MS (PPMS).
“As I’ve grown, I have seen that Mum struggles to do things that she used to find really easy. Mum needs a lot of help now, and I’m proud to be a young carer.” 💬
Despite the challenges, Oliver wants other young carers to know that they’re not alone.
Read Oliver’s full MS Letter by tapping the link in our bio.
#MSSociety #MultipleSclerosis #MSLetters
@mssocietyuk
14.2K
PE🌍🧠 SOZΩ Brain Center – MS Progress Update 🧠🌍
✨ The true heroes of recovery ✨
🧬 Remyelination of long corticospinal projection neurons
🧠 OPCs (Oligodendrocyte Precursor Cells)
🧠 Oligodendrocytes
🧪 BDNF & VEGF neurotrophic signaling
Check out these clips of our patient Mrs. Ranka, living with severe Progressive Primary Multiple Sclerosis (PPMS) with UMN & LMN involvement and paraplegia.
✈️🇷🇸 An international patient who flew from Serbia to Cyprus 🇨🇾, seeking advanced, supportive neurorehabilitation beyond conventional limits.
Through our FNON® (Functional Network Operating Neuromodulation) approach and our multidisciplinary medical team, we focus on:
⚡ brain–spinal network reintegration
⚡ motor activation & postural control
⚡ neuroplastic recovery driven by remyelination biology
🧡 Every MS journey is unique — but hope, science, and precision neuromodulation matter.
🔗 Book your consultation via the link in our bio
www.sozobraincenter.com/book-your-consultation
#petroskattou #sozobraincenter #neuromodulation #sozobrain #MultipleSclerosis PPMS Neuroplasticity Remyelination BDNF VEGF MSHope
@petroskattou
10.5K
DO🧬 A quick but important research update from an MS clinical trial:
The Phase 3 trial of tolebrutinib in primary progressive MS (PPMS) called PERSEUS was just released... and, unfortunately, it did not meet its goal of slowing disability progression when compared to a placebo.
This is super disappointing, especially after earlier promise and interest in this specific BTK inhibitor.
But... there is hope:
✅ There are other BTK-inhibitors in clinical trial for MS that still have high hopes based on clinical trials thus far
✅The FENtrepid trial (which uses a different BTK-inhibitor, called Fenebrutinib) showed positive results for fenebrutinib in primary proressive MS
✅ And tolebrutinib is still under review for SPMS, where it’s shown more promise — so far, this trial showed a 31% reduction in disability progression in non-relapsing SPMS
While this is definitely a bummer, here’s what I’m reminding myself:
Even trials that “fail” help move the field forward. We now know more about what’s needed to make real change in progressivei MS.
I’ll keep you posted as I hear more information.
💬 Want to read the full article?
Comment “update” and I’ll send you the link.
#multiplesclerosis #MSresearch #PPMS #progressiveMS #tolebrutinib #MScommunity #clinicaltrials #neuroupdates
@doctor.gretchen
32.1K
MSToday is #ProgressiveMSDay. With primary progressive MS (PPMS), neurologic function worsens or disability accumulates as soon as symptoms appear, without early relapses or remissions.
Kevin - who lives with progressive MS himself - has helped champion the creation of Progressive MS Day. Here, he talks about his experience and the importance of raising awareness.
@mssociety
554
CACadense helping those with PPMS 🧡 Get your pair today! Link in bio 👀
@cadenseadaptive
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