1.4M
ANThe greatest honour of my life is to have him as my soulmate and I will fight everyday for him❤️🩹
#mnd #mndawareness #terminalillness
@anaclarabutcher
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#Mnd
Dünyanın dört bir yanından insanlardan Mnd hakkında 2.2M Reels videosu izle.
Giriş yapmadan anonim olarak izle.
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APMND M.O.T 🔧🧑🏻🔧
We’ve been working with @charpar95 since 2022, she now visits roughly every 4-6 weeks for an ‘MOT’ - a top up on any changes that have taken place since we last saw her, while she works on our Remote Support programme between her visits.
We have nailed our visits down to a couple of short days (6hrs) and believe with degenerative conditions like MND, pro activity is key - whilst handing over power for daily activities to our clients so they’re not solely reliant on us!
#apexneuro #mnd #motorneuronedisease #als #amyotrophiclateralsclerosis #uk
@apexneuro
157.5K
DA16 months. One disease. And a reality that changes faster than anyone is prepared for.
In this video, I’m showing the progression of ALS (amyotrophic lateral sclerosis) over the past 16 months. What started as subtle weakness slowly turned into something much bigger. This is what living with Lou Gehrig’s disease really looks like day by day, month by month.
ALS, also known as motor neuron disease (MND), is a progressive neurodegenerative disease that affects the nerve cells that control voluntary muscles. As the disease progresses, people living with ALS gradually lose the ability to walk, talk, eat, and eventually breathe independently.
This video documents a very real ALS progression timeline. It’s not meant to scare people. It’s meant to show the truth about this disease so that more people understand what families and patients face every day. Awareness matters because ALS is still considered a terminal illness, and research, advocacy, and community support are desperately needed.
For those who are newly diagnosed with amyotrophic lateral sclerosis, caring for someone with motor neurone disease, or supporting a loved one with Lou Gehrig’s disease, I hope this video helps you feel less alone.
My goal is simple:
to raise awareness about ALS, share the reality of living with this disease, and remind people that even in the hardest moments, it’s still possible to go find some joy.
If you are part of the ALS community, a caregiver, family member, or someone trying to understand motor neuron disease, please share this video so more people can see what ALS really looks like.
Awareness leads to understanding.
Understanding leads to compassion.
And compassion moves the world forward.
#ALS #ALSawareness #LouGehrigsDisease #MotorNeuronDisease #MND #ALSAwarenessMonth #ALScommunity
@darin_nakakihara
178.8K
JAJanuary 2023 is the start of Doddie Aid. With the passing of the inspirational big man only last weekend, let’s make this one the biggest! Download the @doddie_aid app then sign up to my team and my team only 😉, The Barbarians! We have to keep the fight against #MND going!
#DoddieAid #DoddieAid2023 👊🏻🐏
@jason_carl_fox
620.8K
BBA Belfast actor, who won high praise for playing Richard III in a wheelchair, is hoping a new clinical trial drug will help him in his fight against Motor Neurone Disease (MND).
Michael Campbell, also known as Michael Patrick, was diagnosed with the terminal disease in February 2023.
MND, is usually life-shortening and there is currently no cure, but treatment can help manage the symptoms.
📲 For more on this story, and other news from BBC NI, click the link in our bio.
#bbcnewsni #northernireland #motorneuronedisease #mnd
@bbcnewsni
37.1K
MNAt just 26 years old, animal and outdoor loving Tamara received her MND diagnosis. 💔
Whilst Tamara’s love of her animals remains unchanged, her ability to go out into the yard and ride her horses has been taken from her.
Here, Tamara and her mother Tracey share how her MND diagnosis has impacted their lives.
Tamara’s story has touched not just us here at the MND Association, but many of her colleagues and friends. 🧡
Together, they have raised thousands in the fight against MND in Tamara’s honour, and we look forward to sharing more on this with you this week...
______________________________________
#mnd #als #mndassoc #mndassociation #fundraising
@mndassoc
1.4M
DAWatch my 2-year ALS journey — from 2 days before diagnosis, to 1 year later, to today, when I can no longer speak. This is my unfiltered progression with amyotrophic lateral sclerosis (ALS) — also known as Lou Gehrig’s disease, motor neuron disease (MND), or Charcot’s disease.
Two years ago, I was teaching, walking, and talking. One year later, my speech began to fade. Today, I rely on assistive tech to communicate — but my story isn’t over. This video captures the physical decline, emotional fight, and the lesson I never expected: the world is full of kind people.
I’m sharing this to raise awareness and show what ALS/MND really looks like — not just the science, but the humanity. For newly diagnosed patients, caregivers, and families: you’re not alone. This disease takes your movement and your voice, but not your hope or your heart.
You’ll see:
– A clip from before diagnosis
– My 1-year update and changes in speech/mobility
– Today’s reality: no voice, but still finding joy
I made this video for anyone affected by ALS, MND, Lou Gehrig’s disease, or Charcot’s disease — and anyone who believes in strength through community. Please share this to help spread awareness and connect with others who need to see they’re not fighting alone.
Subscribe for more honest updates on life with ALS/MND — covering progression, adaptive tech, and the pursuit of joy even when life slows down.
#ALS #MND #LouGehrigsDisease #MotorNeuronDisease #CharcotsDisease #ALSprogression #ALSawareness #disability #wheelchairlife #hope #inspiration #GoFindSomeJoy
Even when you lose your voice, your story still has power.
@darin_nakakihara
179.8K
ANWe’ve spent more than £3500 getting Jonny seen and diagnosed privately whilst the NHS LAUGHED in our faces when we asked them to consider MND. They said he had FND and told him to do physio which included a lot of heavy weight lifting which we now know is not allowed for MND patients. The NHS recommendations made him worse faster and we can’t change that but we can fight from now on. Jonny is my soul mate, best friend, love of my life and I will do ANYTHING in my power to fight for him even with this terminal desease and all help is appreciated 🥹❤️🩹 thank you for your support and prayers. I know God is with us.
🇧🇷Nós gastamos mais de £3.500 para que o Jonny fosse atendido e diagnosticado no sistema privado, enquanto o NHS riu na nossa cara quando pedimos para considerarem a possibilidade de ELA (Doença do Neurônio Motor). Disseram que ele tinha FND e recomendaram fisioterapia que incluía levantamento de peso pesado, algo que agora sabemos que não é recomendado para pacientes com ELA.
As recomendações do NHS acabaram fazendo com que a condição dele piorasse mais rápido. Não podemos mudar o que já aconteceu, mas podemos lutar a partir de agora.
Jonny é minha alma gêmea, meu melhor amigo e o amor da minha vida, e eu farei tudo que estiver ao meu alcance para lutar por ele, mesmo diante dessa doença terminal. Toda ajuda é muito bem-vinda. 🥹❤️🩹
Obrigada por todo o apoio e pelas orações. Eu sei que Deus está conosco.
#mndawareness #mnd #mnddiagnosis
@anaclarabutcher
1.2K
LISteve’s inspirational story on living with MND. Working with our Speech and Language Therapy Team, he’s trying cocktails with new technology and controlling his world with his eyes.
#mnd #mndawareness #speechandlanguagetherapy #manchesterunited #robburrow #inspirational
@livewellsouthwest
66.1K
BBRyan Horsfall had always been fit and healthy when he noticed a ripple in his bicep and then a loss of mobility in his arm.
The future for him and his wife, Kimberly, was focused on raising their three young children and making memories together.
But just before Christmas doctors told him his arm issues - which he first had in October - were being caused by motor neurone disease (MND) - a condition that causes muscle weakness which gradually worsens and there is no cure for.
The 39-year-old from Stowmarket in Suffolk now faces an unknown future, but he is determined not to let the diagnosis define him as he focuses on spending time with his family.
Tap link in @bbcsuffolk bio for more
#MND #MNDAwareness #Stowmarket
@bbcsuffolk
10.3K
ZADid you know that every day in Australia, two people are diagnosed with Motor Neurone Disease (MND) and two people lose their lives?
I recently met with Warringah locals Ron and Anna. Ron was diagnosed at just 35, and together they are raising two young children. Their story is deeply moving, and tragically they know of two other young men here in Warringah also living with MND.
Across Australia, around 2,700 people are living with this cruel disease, with thousands of families impacted. The cost is already more than $5 billion a year and is projected to rise to $7.5 billion by 2025.
That’s why I am calling on the government, alongside Ron, Anna and MND Australia, to fund a national MND database. We need this data to drive better treatment, prevention, and ultimately, save lives.
Thank you to Ron and Anna for sharing their story with me, and for their extraordinary advocacy in the face of such heartbreaking challenges.
@zalisteggall
3.0M
DAOne year. Same disease. A very different voice.
This is what ALS sounds like after 12 months.
Every May 19, I’ll document my voice—until I no longer can.
#ALS #VoiceProgression #GoFindSomeJoy #LouGehrigsDisease #TerminalIllness #ALSAwareness #BeforeAndAfter #OneYearLater #MND #VoiceBanking
@darin_nakakihara
✨ #Mnd Keşif Rehberi
Instagram'da #Mnd etiketi altında 2.2 million paylaşım bulunuyor ve platformun en canlı görsel ekosistemlerinden birini oluşturuyor. Bu devasa koleksiyon, şu an gerçekleşen trend anları, yaratıcı ifadeleri ve küresel sohbetleri temsil ediyor.
En yeni #Mnd videolarını keşfetmeye hazır mısınız? Bu etiket altında paylaşılan en etkileyici içerikleri, giriş yapmanıza gerek kalmadan görüntüleyin. Şu an @darin_nakakihara, @anaclarabutcher and @bbcnewsni tarafından paylaşılan Reels videoları toplulukta büyük ilgi görüyor.
#Mnd dünyasında neler viral? En çok izlenen Reels videoları ve viral içerikler yukarıda yer alıyor. Yaratıcı hikaye anlatımını, popüler anları ve dünya çapında milyonlarca görüntüleme alan içerikleri keşfetmek için galeriyi inceleyin.
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🌟 Öne Çıkanlar: @darin_nakakihara, @anaclarabutcher, @bbcnewsni ve diğerleri topluluğa yön veriyor
#Mnd Hakkında SSS
Pictame ile Instagram'a giriş yapmadan tüm #Mnd reels ve videolarını izleyebilirsiniz. Hesap gerekmez ve aktiviteniz gizli kalır.
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12 reel analizi
💡 En iyi performans gösteren içerikler ortalama 1.6M görüntüleme alıyor (ortalamadan 2.7x fazla). Yüksek rekabet - kalite ve zamanlama kritik.
Peak etkileşim saatlerine (genellikle 11:00-13:00, 19:00-21:00) ve trend formatlara odaklanın
İçerik Oluşturma İpuçları & Strateji
💡 En iyi içerikler 10K üzeri görüntüleme alıyor - ilk 3 saniyeye odaklanın
✨ Çok sayıda onaylı hesap aktif (%58) - ilham almak için içerik tarzlarını inceleyin
✍️ Hikayeli detaylı açıklamalar işe yarıyor - ortalama açıklama uzunluğu 779 karakter
📹 #Mnd için yüksek kaliteli dikey videolar (9:16) en iyi performansı gösteriyor - iyi aydınlatma ve net ses kullanın
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Mnd Keşfet#کره بدن mnd#ایا محصولات mnd خوب است#محصولات mnd#michael patrick mnd#تونر mnd#mnd campinas#کرم سفید کننده mnd#mnd clinic