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#Pwme Reel by @itsaliceella (verified account) - Invisible illnesses and hidden disabilities are real, and your lived experiences are valid. FACK what anyone else thinks 🫶🏻 But I'm not gonna lie,
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@itsaliceella
Invisible illnesses and hidden disabilities are real, and your lived experiences are valid. FACK what anyone else thinks 🫶🏻 But I’m not gonna lie, you can get a whole bunch of lovely supportive comments but the ones you can’t stop thinking about are the ones from people like this. And it’s not ok. I’ve since deleted the comment and blocked them as I want this to be a positive space for us all, and for us to continue to support each other and raise awareness, whilst sharing the good and the bad. 💜🖕🏻😂 #myalgicencephalomyelitis #mecfs #cfsme #mecfswarrior #mecfsawareness #myalgicencephalomyelitisawareness #pwme #chronicfatigue #chronicfatiguesyndrome #chronicfatigueawareness #millionsmissing #chronicillnesswarrior #invisibleillness #invisibleillnessawareness #chronicillnessawareness #chronicallyawesome #chronicallyfabulous #chronicallyill #chronicbadass #sickchick #babewithamobilityaid #disabledandcute #disabledandproud #sickbitch #sickchick #sickaf
#Pwme Reel by @channel4news (verified account) - ME, or Myalgic encephalomyelitis, is linked to your genetics, an early study by Decode ME has suggested. They've found eight areas of genetic code in
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@channel4news
ME, or Myalgic encephalomyelitis, is linked to your genetics, an early study by Decode ME has suggested. They’ve found eight areas of genetic code in people with ME are ‘significantly different’ to the DNA of people without the disease. The results still need to be reviewed, but the University of Edinburgh research team hope these results will pave the way for future research and the development of drugs. #DecodeME #PwME #MyalgicEncephalomyelitis #Genetics #DNA #C4News #Channel4News
#Pwme Reel by @meactnet - Join us this #MillionsMissing to tell the world we are #FrailAndFurious. And so much more! millionsmissing.org Are you frail and fabulous? Frail and
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@meactnet
Join us this #MillionsMissing to tell the world we are #FrailAndFurious. And so much more! millionsmissing.org Are you frail and fabulous? Frail and fighting…formidable…funny…funky? We want to hear what your “and” is…so tell us below what is your “f” word? US Healthcare classifies the most disabling conditions as “medically frail.” Many people don’t believe how severe and disabling myalgic encephalomyelitis (ME aka ME/CFS) can be. If decision-makers don’t know, millions of people risk their healthcare. So help us make it LOUD and CLEAR: People with ME and Long COVID are medically frail. We are also: Fierce…Funny…Friendly…Fabulous…Formidable…Fervent…Fighting…Fearless. Fight for our healthcare- let everyone know. Will you join us? We are Frail and Furious. #pwME #MECFS #ProtectMedicaid Video description: white letters on a black background. Transcript above is in post starting with words US Healthcare.
#Pwme Reel by @actionform.e (verified account) - 🔎 From DecodeME to LOCOME, this year has been a landmark one for ME research. Hear from our CEO Sonya Chowdhury, Senior Research Manager Daphne Lam
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@actionform.e
🔎 From DecodeME to LOCOME, this year has been a landmark one for ME research. Hear from our CEO Sonya Chowdhury, Senior Research Manager Daphne Lamirel, and Clare Francis Research Fellow, Dr Audrey Ryback, as they share why this is a pivotal moment for ME research - and how Action for ME is accelerating understanding for everyone affected. This Big Give week, we're celebrating the difference your support can make 🧬 Donate today and your gift will be matched, helping us make double the impact! 🔗 Link available through bio, Threads & Stories (24hrs). #BigGive #ChristmasChallenge #MECFS #pwME #MyalgicEncephalomyelitis
#Pwme Reel by @jenniejacques1 (verified account) - ME before ME with @emzfitofficial @rosemac01 looking back to perk me up! #tbt What's ME? It's a nuero-immuno-metabolic disease 🦠 affecting millions
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@jenniejacques1
ME before ME with @emzfitofficial @rosemac01 looking back to perk me up! #tbt What’s ME? It’s a nuero-immuno-metabolic disease 🦠 affecting millions worldwide; millions more off the back of Covid19. 2018 I got sick. I never got better. Like #millionsmissing with the same. As science advances, we are getting more answers! It used to be psychologised which drastically hindered biomedical research 🙄 Although interestingly we were never allowed to give blood 👁️ Anyway, diagnostic blood tests are (finally!) in development 😃 💥 About time! “WE CAN SEE ME IN THE BLOOD 🩸 “ - psychologise that motherfckers 😂 Infections have been wreaking havoc for decades! Not everyone can trace their ME back to infection, but most can. 💙🦋 I was hospitalised with the severe acute EBV & hepatitis in 2019 complicated by a chronic UTI PLUS pesky kidney stones; more than “pesky” - in hospital I pissed one out (fun!)🩸BUT compared to ME, I call them pesky 😂 6 years later I live my life as a shadow of former self with ME/CFS. Occasionally mobilising with a stick & using a wheelchair ♿️ if I’m going to dare to go out far! I am functioning without aid in my home & garden 💪 where I can lay down flat when needed. ❤️For the first few years I was mostly bed-bound so this is never taken for granted❤️ I’m happy 😃 & LUCKY to be improving! I love my life despite limitations. I have an incredible partner, 2 homes 🍀 2 beautiful dogs 🐶 🐶 Fortunate is an understatement. With ANY improved health, I will make sure the world 🌎 helps #pwme There is a 7 fold increase in suicide with this illness - not behavioural/directly related to mental health - it’s just a savage illness to “live” with, described as a “living death” & inflammation highly likely associated too. It feels like my body shuts down. On a cellular level. Even mild exertion can too often be paid for. PEM (post exertional milaise) is what we call it when we “crash.” “Exertion” can be brushing teeth or turning in bed 🛌 or taking a phonecall 😞 - severe & very severe ME can lose the ability to drink or eat. I am still riddled with chronic infections 🤢 & will be writing soon about my journey with #chronicuti
#Pwme Reel by @itsaliceella (verified account) - Rest Is Productive 💜✨⁣⁣ It's taken me around 18 years of living with my chronic illness to realise that most of the time when I thought I was resting
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@itsaliceella
Rest Is Productive 💜✨⁣⁣ It’s taken me around 18 years of living with my chronic illness to realise that most of the time when I thought I was resting, it wasn’t true rest. ⁣⁣ I could never really rest without my mind spiralling. Without feeling guilty, or like I should be doing more. I’d only rest when my body was screaming out for it and by that time the damage was done. ⁣⁣ Even when I would rest ‘all the time’ I wasn’t really resting as I was hating myself for giving into it. I would also be feeling such grief for my health when I tried to rest- sure there needs to be time for that but I can now separate that time.⁣⁣ I’d also put so much pressure on myself to get ‘better’ that I’d push through and then get worse. ⁣⁣ I’ve learned in the last year or so how to take a step back, how to listen to my body, and how to accept my circumstances.⁣⁣ It’s hard living, for the most part, house bound and unable to do much when it comes to socialising, or with career goals or family goals, and sometimes I would find myself asking ‘why me?’⁣⁣ But now I try to answer that with ‘why not me?’ and to take each day as it comes. ⁣⁣ I personally have to meditate to be able to really rest, and have been doing that twice a day, every day for the last maybe year and a half. ⁣⁣ Some people might think that meditation is just about sitting cross legged, and being quiet and that it’s easy. But anyone who’s tried it will know that it’s a real challenge. To be still, to watch thoughts come and go, while keeping the mind focused and aware and in the present.⁣⁣ It’s called a meditation practice because it takes practice, and is a skill. Some days I can’t do it at all and others it’s incredible. To learn what true calm feels like has been a real game changer for me 🧘🏻‍♀️✨ ⁣⁣ So this is your sign, if you need it 💜 Rest is productive 💜 ⁣⁣ ⁣⁣ #restisproductive #paceyourself #restisimportant #chronicallyfabulous #sickchick #sickaf #chronicbadass #babewithamobilityaid #chronicallyawesome #invisibleillnessawareness #pwme #myalgice #cfsme #mecfsrecovery #mecfs #millionsmissing #longcovidrecovery #longcovid #chronicfatiguesyndrome #spoonielife
#Pwme Reel by @jenniejacques1 (verified account) - I am re-posting this video message from Pierre (Carla's father) in hope that it will touch your heart ❤️ & for now to replace the distressing footage
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@jenniejacques1
I am re-posting this video message from Pierre (Carla’s father) in hope that it will touch your heart ❤️ & for now to replace the distressing footage with this deeply felt message * We are hoping sincerely that you’ll take just a moment of your time this weekend to sign our open letter ✉️ - link in my bio; only your email & name is required. * Please 🙏 help #pwme get better “care.” This is totally unacceptable. We desperately need healthy people to come on board 💥 * #severeme #mecfsawareness
#Pwme Reel by @actionform.e (verified account) - Hear from Daphne Lamirel, our Senior Research Manager, as she shares why now is an important time for ME research. 🧬 This year, DecodeME research e
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@actionform.e
Hear from Daphne Lamirel, our Senior Research Manager, as she shares why now is an important time for ME research. 🧬 This year, DecodeME research established clear genetic signals linked to ME, giving us clues to biological mechanisms behind the disease. We're building on these findings to accelerate understanding for everyone affected by ME. 🤝 Your support directly helps to fund the partnerships and projects driving ME research forwards, such as our Genetic Centre of Excellence. This initiative brings together researchers, charity representatives and people with lived experience to advocate for more strategic research funding and strives for stronger collaboration among researchers and beyond. 🧡 Give today, and your donation will be matched, helping us make double the impact (see link in our bio) #BigGive #ChristmasChallenge #MECFS #pwME #MyalgicEncephalomyelitis
#Pwme Reel by @itsaliceella (verified account) - Today is international M.E. awareness day and y'all need to listen to M.E. Poppins. (Sounds kinda like Mary right? Not sure if that worked) 😅 Anyways
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@itsaliceella
Today is international M.E. awareness day and y’all need to listen to M.E. Poppins. (Sounds kinda like Mary right? Not sure if that worked) 😅 Anyways, I’ll keep it short this year (my 19th) From severe M.E. to moderate M.E. it’s absolutely life shattering. I’ve lived them both and although I’m now in the ‘moderate’ category I am house bound most days and it affects every aspect of life. 💔 📣 We need research. We need funding. We need to be taken seriously. 📣 If you can afford to donate, any amount is so hugely appreciated from all of us 💕 Link to donate is in my bio 🌹 #millionsmissing #goblueforme #longhaulers #postviral #myalgice #pwme #millionsmissing2023 #canyouseemenow #mecfs #myalgicencephalomyelitis #invisibleillnessawareness #butyoudontlooksick #youdontlooksick #invisibleillness #cfsisterhood #invisibleillnessawareness #spoonie #spooniewarrior #cfswarrior #chronicillness #spooniesisters #chronicillnesswarrior #chronicillnessawareness #meawareness #pwme #meawarenessmonth #cfsme #myalgicencephalomyelitisawareness #longcovid Video description: Alice is dressed up as Mary poppins and is singing a song parody of Supercalafr She is wearing a white lace dress with matching hat and red bows and corset. Behind her is original footage from the movie. However the lyrics are as follows: I have facking myalgicencephalomyelitis, even though I seem alright I’m feeling quite atrocious, It took me more than four years to get a diagnosis, twenty something long years later we don’t have a cure its, Its such a riddle why they think its a lie, its such a pickle when we’re left here to die, think that we’re on the fiddle when we look fine, left in the middle with no funding but why? One day I got sick and somehow I never got better, Years of laying in my bed it’s really a life wrecker, There are over twenty million of us poor go getters, We need research otherwise we won’t be getting better!
#Pwme Reel by @jenniejacques1 (verified account) - Every little helps and we need your help to fight for justice for ME - please 🙏 DONATE via the link in my bio. Thank you! 💙🦋 We're gonna make it
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@jenniejacques1
Every little helps and we need your help to fight for justice for ME - please 🙏 DONATE via the link in my bio. Thank you! 💙🦋 We’re gonna make it through. Tired of fighting is an understatement. #meawareness I am currently recovering ❤️‍🩹 from pelvic vein embolisation - which has been complicated and (as expected!) will likely be protracted! But here’s to better blood flow! 🍾 🥂 Multiple infections and my little old immune system are both trying their best to win 🏆 the battle. And I refuse to let go of hope for a better quality of life 💪 I’ll caveat that with… a positive mindset is not going to make much difference to the outcome 😂 but the right doctors and treatments might! 👀 I get more empathy for the pesky kidney stones than the ME generally; as bad as the kidney stones are - I’d rather have them TWICE over, than the ME 😂 but I’m aware most people can’t relate… and kidney stones are a “see you next Tuesday.” Full update and more test results coming soon to continue to raise awareness for this horrific illness. Just in case my research can help anyone else with their own journey 🧩 I am not a doctor 👩‍⚕️ (wish I was!) and I don’t give advise. But I try to find the doctors who can 👌 help. And I try to educate myself and my audience along the way. It’s a lonely disease 🦠 that is still horrifically underestimated. But we are, finally, moving in the RIGHT direction. Now, let’s make hospital a safe place for #pwme #severeme Jx
#Pwme Reel by @actionform.e (verified account) - "The Big Give is a lifeline for people like me and other scientists." We're investing in the next generation of ME researchers, through projects lik
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@actionform.e
"The Big Give is a lifeline for people like me and other scientists." We're investing in the next generation of ME researchers, through projects like our Future Leaders Network. Hear from Dr Audrey Ryback, whose fellowship was funded through Action for ME, as she highlights how our projects are helping bring funders, biomedical research leaders and industry professionals together to inspire early-career researchers and accelerate ME research. 🌟 Your donations directly make a difference. Donate today, and your donation will be doubled (see link in our bio!) #BigGive #ChristmasChallenge #pwME #MECFS #MyalgicEncephalomyelitis
#Pwme Reel by @itsaliceella (verified account) - I don't understand these TIKTOK trends but I've had this song in my head for weeks now & couldn't resist 😂😂 🤷🏻‍♀️ ⁣ ⁣ #butterflyinthesky #relatabl
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@itsaliceella
I don’t understand these TIKTOK trends but I’ve had this song in my head for weeks now & couldn’t resist 😂😂 🤷🏻‍♀️ ⁣ ⁣ #butterflyinthesky #relatablecontent #chronicillnesshumor #chronicallyfabulous #sickchick #sickaf #chronicbadass #babewithamobilityaid #chronicallyawesome #invisibleillnessawareness #healthmemes #symptoms #spoonielife #chroniclife #sicklife #disabledlife #mecfsawareness #myalgicencephalomyelitis #pwme #millionsmissing #invisibleillnesswarrior #chronicpainwarrior #chronicfatiguesyndrome #chronicwarrior #chronicillnesslife #chronicillnesscommunity #spooniecommunity #spooniesisterhood #spooniesisters

✨ #Pwme Discovery Guide

Instagram hosts 585K posts under #Pwme, creating one of the platform's most vibrant visual ecosystems. This massive collection represents trending moments, creative expressions, and global conversations happening right now.

Discover the latest #Pwme content without logging in. The most impressive reels under this tag, especially from @itsaliceella, @jenniejacques1 and @channel4news, are gaining massive attention. View them in HD quality and download to your device.

What's trending in #Pwme? The most watched Reels videos and viral content are featured above. Explore the gallery to discover creative storytelling, popular moments, and content that's capturing millions of views worldwide.

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