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You’ve lived it. Now help change it. Share your experience. Get rewarded. Make research better for everyone. #rarepatientvoice #health #wellness #research #chronillness #raredisease #spoonie #guthea
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EARN A QUICK $30 WITH THIS SURVEY (make sure to sign up in the website, then you’ll get an invite to start the survey!!) help the deaf community out!! Link: https://rarepatientvoice.com/rp/jaredhuseb
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We’re looking for the faces (and voices) of the Alzheimer's community. If you have been diagnosed or you’re supporting a loved one with Alzheimer's, we invite you to join an interactive community!
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We’re looking for the faces (and voices) of the Ulcerative Colitis (UC) community. Living with UC takes strength. We want to celebrate that strength by featuring real patients in upcoming projects. F
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Living with Tenosynovial Giant Cell Tumor isn't always easy, but your experience can help others. Join a conversation that counts. We're looking for TGCT patients to share their stories through a 30
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Some days, just getting through the day is the victory. πŸ’™ If you’re moving a little slower right now, that doesn’t mean you’re falling behind. Rest is productive. Healing takes time. And doing your
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We’re looking for the faces (and voices) of the Prostate Cancer community. If you have been diagnosed or you’re supporting a loved one with Prostate Cancer, we invite you to share your perspective a
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Research isn’t just about the future! It’s about helping families today! Every participant helps move medicine forward. #health #wellness #chronicillness #patient #caregiver
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MULTIPLE STUDY POST!!! If you’re interested in being part of upcoming projects, sign up today! Your Voice Matters! Already a member? DM us your email + the study name, and we’ll check your profil
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MULTIPLE STUDY POST!!!! We want to celebrate your strength by featuring real patients in upcoming projects. From video shoots, photo shoots, and speaking engagements. πŸ“ Start your journey here: htt
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MULTIPLE STUDY POST!!!! We want to celebrate your strength by featuring real patients in upcoming projects. From video shoots, photo shoots, and speaking engagements. πŸ“ Start your journey here: ht
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Have Uncontrolled Asthma? Participating in a clinical trial might prevent you from needing a high-dose steroid inhaler by improving lung function. There’s no such thing as a convenient asthma attack
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About @rarepatientvoice

Wes Michael: Founder/President RPV is a verified Instagram micro influencer. With 14.2K followers and 12 posts, rarepatientvoice's account shows a follower-to-following ratio of 2.7:1. This profile demonstrates strong community engagement within its niche. View all content anonymously on Pictame - no login required.

rarepatientvoice's engagement rate sits at 0.63%. For accounts with 10K-100K followers, the average is around 2.5%, so there's some room to grow β€” though every community is unique.

Out of the last 12 posts, 17% are videos and 83% are photos. Notably, videos tend to get 4.3x more engagement than photos. Content shows up about every 31 days. Captions lean moderate, averaging 389 characters.

0.63% engagement rate β€” room to grow compared to average for 10K-100K follower accounts.
17% videos, 83% photos. Videos get 4.3x more engagement here.
Posts about every 31 days.
2.7:1 follower-to-following ratio.

FAQs About @rarepatientvoice

With Pictame, you can browse @rarepatientvoice's posts, reels, and stories without logging into Instagram. The profile owner won't know you visited.

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rarepatientvoice
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@rarepatientvoice

Wes Michael: Founder/President RPV

Public
Posts
12
Top Hashtags
#rarepatientvoice#patient#caregiver#chronicillness#health#wellness#cancer#research

Explore the most impactful hashtags used in recent posts. These tags highlight the core interests and trending topics that define this profile's digital influence and content strategy.

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Popular Hashtags

#tiktok#christmas#instapic#photoshoot#igers#artwork#catsofinstagram#architecture#dance#instafashion#inspiration
Followers
14.2K
Following
5.2K
Avg. Likes
86
Avg. Comments
4
Engagement
0.63%

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