72.8K
ASAirports as a guy living with duchenne muscular dystrophy are wild, but we pull up and we get it done 🤝
@noraa.chantress ✨
@asksupermann
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10.6K
THMy ancestors are screaming rn!
#musculardystrophy #interabled #interabledrelationship #wheelchair #humor
@thunder_nguyen
3.6K
NYWhat I think I look like vs. what I actually look like 💀
#Walking #instagramvsreality #viralreeĺ #childactor #musculardystrophy
@nylan.p
102.0K
MRThey say start small, but this felt massive. This is the reality of Week 1 fighting DMD.
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The weight isn’t heavy to you, but my muscles have to fight 10x harder just to move it. Huge thanks to Giri Physiotherapy for pushing me safely.
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Week 1 Routine:
🔥 Front Raises: 2kg plate (2 sets x 10 reps)
🔥 Scapular Rows: 2 sets x 10 reps
🔥 Shoulder Press: 2kg (2 sets x 10 reps)
🔥 Sit to Stand (w/ Walker): 5 Reps
🔥 Mini Squat Initiation: 3 sets x 10 reps
🔥 Hip Extension: 0.5kg (10 reps)
We are just getting started. Follow the journey. 🚀
#DMDWarrior #MuscularDystrophy #GiriPhysiotherapy #AdaptiveFitness
@mr.s_a_k_i_b
913
IMExercise is known to improve overall health and mental well-being, which is why it's important to share exercises tailored for the Becker muscular dystrophy (BMD) community. In this video, Physical Therapist Claudia Senesac performs a seated core stability exercise with a patient with Becker muscular dystrophy.
For more information on exercises appropriate with Becker MD, read "What Exercises Are Appropriate with Becker?": https://imagingnmd.pulse.ly/p1cjubyzs6
#BeckerAwarenessWeek #BeckerMDweek
@imagingnmd
4.4K
RO99% of the time, I chose the safety of my home.
Where my body didn’t have to work extra hard, my anxiety was lower, and I felt safe.
Meanwhile, life outside kept going, and my depression grew until it almost swallowed me alive.
Mobility aids gave me my life back.
For many disabled and chronically ill people, the calculations look different, but they’re just as constant.
Light. Noise. Restrooms. Energy levels. Weather. How much today will cost tomorrow.
If we don’t show up, it’s not because we’re lazy. It’s because the cost is too high.
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#DisabilityReality #DisabledLife #MuscularDystrophy #FSHD #ChronicIllness
@rollwithasmileblog
221.9K
WAOkay okay, so this video might be a bit much, but I do get this question a lot. I started making this video to show why we really weren’t concerned about Colton having muscular dystrophy and it kind of turned into a Colton hype video - but honestly, he could use that sometimes, so I decided to roll with it. But here’s the thing - we would have been SHOCKED if Colton’s CK (the muscle enzyme that is released into your bloodstream when muscles break down) had been elevated like his sisters’. He has always been an energizer bunny and can literally run around for hours without having the leg pain or weakness that his sisters experience from simply walking. We of course had his CK checked to be safe and were not surprised when it came back completely normal.
We did assume, however, that he would be a carrier for LGMD2C and would need to take that into consideration if he chose to have a family in the future. But we were happy to learn that he is not even a carrier of LGMD2C - he got the dominant gene from both of us.
It can be hard sometimes to watch Colton perform like this athletically - to know that his sisters won’t be able to do the things that he can. But we are also so proud of his hard work and dedication in everything that he does, and he deserves to be celebrated for who he is, regardless of what his sisters are going through.
#lgmd2c #musculardystrophy #carrier #raredisease #athletic #soccerplayer #genetics #lgmd #seacoastnh
@walkonlgmd
146.9K
BOEveryone is accepting of Autism until...
My brother Bodi is 31, profoundly Autistic, non verbal, very vocal and he has challenging behaviours.
My son Kaiden is 10, Autistic level 2 and he has Duchenne Muscular Dystrophy.
❤️❤️
#profoundautism #autism #duchennemusculardystrophy #disability #specialneeds
@bodikaidenandi
50.3K
J7Muscular dystrophy can be really scary for people and their families who support them! I think the important thing is to always keep hope and find strength during every activity! Jules hasn’t been in the gym for a few weeks so this session was a warm welcome to remind her of how far she has come and how great she has been doing
#javeno #j7healthcentre #brainhealth #cancerawareness #disability #musculardystrophy #gymmotivation #workoutmotivation#nevergiveup #gym #instalike #instadaily #confidence #teamwork
@j7healthjaveno
1.1K
CEBecker muscular dystrophy before after.
He is 11 y/o with BMD. He could get back lots of muscles already so we just started focus on the muscles doesn’t have pains but can enhance sports performance. This is the results for his trunk. Just a few more months to go until he doesn’t need to come that often. Currently he comes our place every 2 weeks all the way from a rural area.
We cure MD and all the cases we found the muscles mass and strength recovery.
MD is curable.
#BMD #beckermusculardystrophy
#musculardystrophy
#筋ジストロフィー
@cell_healing
931.5K
AFWe found out we were pregnant again around our twins first birthday..
After walking through secondary infertility, the twins were such a blessing and we honestly didn’t know if our family would grow anymore. So when that test was positive, we felt everything all at once.
Excited.
Grateful.
Terrified.
Four kids in four years felt overwhelming. We wondered how we would handle the chaos, the exhaustion, the stretch of it all.
And then life changed in ways we never expected.
After our son’s diagnosis, this season became heavier than we ever imagined. There are days that feel hard in ways I don’t always have words for.
And in the middle of all of it… there’s her.
Her laughter.
Her energy.
Her light.
She brings joy into the hard days. She keeps our house loud, busy, and full of life. She reminds us to keep moving, to keep laughing, to keep choosing joy even when things feel heavy.
She wasn’t just a surprise.
She’s been a gift our family didn’t know we would need.
Four kids in four years.
A lot of chaos.
A lot of noise.
And so much unexpected blessing.
Sometimes the things that feel the scariest at first become the greatest light later. 🤍
#4under4 #secondaryinfertility #motherhoodjourney #specialneedsmom 🏷️: mom life, ADHD mom, simplicity, type A heart, type B life, medical mom, 4 kids in 4 years, muscular dystrophy, home life.
@afton_leishman
27.9K
HA⭐️ Rare disease parents - do any of your kiddos have a feeding tube?
⭐️ Do you feel like it has lightened your load?
At 6 months old, Austin was failure to thrive and admitted to the hospital to get it figured out - we THOUGHT he’d do intensive feeding therapy and we’d go home. We were WRONG.
He was given a temporary NG feeding tube while they ran test after test trying to get to the bottom of what was happening - why he wasn’t holding up his head, why he refused to eat.
After everything came back clear, we finally got an answer after three weeks - a rare form of congenital muscular dystrophy called L-CMD. No treatment, no cure.
Go home and love him and keep him healthy (easier said than done when you also have a toddler) - for as long as you have him.
We knew then that we should opt for the G tube - the feeding tube that goes directly into the stomach. His feeding had gotten worse in the hospital- barely taking 10ml by mouth after trying and trying.
Now, exactly 6 years later, he won’t swallow any food but he does enjoy a drop of Dr Pepper out to lunch with his grandparents 🥤 😍
It wasn’t what we imagined for life. It’s a different kind of family dinner in our house. It’s sad if we think too hard about it, but the feeding tube has a) saved his life and b) taken away so much of the anxiety that marked the first 6 months of his life without answers. It’s a mixed bag of emotions but overall has been to the positive.
Valentine’s Day 2020 - discharge day - the day that changed everything.
And PS I know quite a few people actually who have had to have feeding tubes for various reasons. Medical technologies are truly miraculous 🙏
#momofboys #specialneedsmom #caregiving #sahm #feedinglittles
@hannah.lowe.c
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