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nmosd awarenessMOGAD vs NMOSDnmosd optic nerve mri enhancementmultiple sclerosis nmosdshakira mcfadden's nmosd diagnosiscoping with nmosdshakira mcfadden's fundraiser for nmosd treatmentshakira mcfadden's advocacy for nmosd awareness

Reel di Tendenza

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#Nmosd Reel by @theblindcook (verified account) - My time on MasterChef taught me a lot about cooking, but it also taught me the importance of speaking up for myself. #ad ​ Through open discussions w
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@theblindcook
My time on MasterChef taught me a lot about cooking, but it also taught me the importance of speaking up for myself. #ad ​ Through open discussions with the producers, my doctor and those closest to me about my needs living with neuromyelitis optica spectrum disorder (#NMOSD), I was able to get the proper accommodations to compete – and subsequently win!​ Getting the support you need from colleagues, doctors, family members or friends requires some very honest conversations – but it’s worth it. ​ Hear meaningful discussions between others living with NMOSD and their loved ones and explore resources to start your own conversations by visiting the link in my bio. ​ #NMOSDWontStopMe #AmgenPartner @amgenbiotech
#Nmosd Reel by @tayarrasmith - 💔 #spasticity #fyp #disabilityadvocate #quadriplegic #disabledinfluencer #nmosdwontstopme #nmosd #tayarrasstory #disabledblogger #disabilityawarenes
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@tayarrasmith
💔 #spasticity #fyp #disabilityadvocate #quadriplegic #disabledinfluencer #nmosdwontstopme #nmosd #tayarrasstory #disabledblogger #disabilityawareness #trendingnow
#Nmosd Reel by @theblindcook (verified account) - #ad I had never heard of neuromyelitis optica spectrum disorder (NMOSD), the rare autoimmune disease that caused my vision loss, until my diagnosis. 
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@theblindcook
#ad I had never heard of neuromyelitis optica spectrum disorder (NMOSD), the rare autoimmune disease that caused my vision loss, until my diagnosis.    It took four scary and lonely years to get correctly diagnosed.    This #NMOAwarenessMonth, I’m sharing a few important facts about NMOSD so that others can find the answers they need sooner and advocate for their health.    @amgenbiotech
#Nmosd Reel by @hairbykaylamarie (verified account) - I've had this reel drafted for awhile because I was afraid of jinxing anything but I'm not allowing my fear to take over on how proud I am of myself…
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@hairbykaylamarie
I’ve had this reel drafted for awhile because I was afraid of jinxing anything but I’m not allowing my fear to take over on how proud I am of myself… About two years ago, I left the hospital unable to walk without a walker and struggling with double vision and so many symptoms that everyday life was A LOT. Neuromyelitis Optica (NMOSD) turned my life upside down physically, mentally, and emotionally. But I made a promise to myself: I will fight for my life back! My neurologist told me in the hospital that I may have to quit working behind the chair and he advised I rethink about doing weddings. He also said that working out will most likely look different than what I was used to and scaling back would be smart. Today, I’m walking on my own. Working full-time. Strength training 3 to 4 days a week again. My vision is back and most days my symptoms are completely manageable! Are some days still hard? Absolutely! BUT I’ve never stopped showing up for myself. This reel is for her- the girl who felt broken, scared, and unsure of what the future would look like. It gets better babe! It gets better! 💚 * Special thanks to all my clients, friends, and family for pushing me forward on my dark days and reminding me how strong I am! And I just want to take a moment to say how grateful I am for my small but mighty gym @sandiegoelitetraining and the incredible trainers who’ve been part of my journey the past couple months! Excited to see how strong I can get!* • • • #NMOAwareness #comebackstory #healingjourney #NMOSD #nmowontstopme #nmo #ResilientAF #lifeafterdiagnosis #invisibledisease #sumairafoundation #guthyjacksonfoundation #lifeofahairstylist #behindthechair #sandiegohairstylist
#Nmosd Reel by @weareillmatic - So many of us didn't get the right diagnosis the first time. Before MS, NMOSD, or lupus was ever named, we were told it was stress. Anxiety. Migraine
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@weareillmatic
So many of us didn’t get the right diagnosis the first time. Before MS, NMOSD, or lupus was ever named, we were told it was stress. Anxiety. Migraines. Aging. Being “too busy.” Being “too sensitive.” Or our personal favorite, nothing at all. We knew something was wrong, but we were dismissed, misdiagnosed, or told to wait it out. And that waiting cost time, energy, and sometimes our trust in the healthcare system. This isn’t rare in our community. It’s a pattern. Especially for Black women navigating chronic illness, where being believed often feels like an uphill battle. So let’s talk about it. Before you were diagnosed, what were you first told it was? Drop it in the comments. Your story might help another sister feel less alone 🧡 #WeAreILLMatic #MultipleSclerosis #NMOSD #Lupus #ChronicIllnessJourney BlackWomenHealth
#Nmosd Reel by @thegeminiadvocate - Gosh this one hits so hard. Sometimes I even catch myself saying these things!! Image description: Lexi in red and black pajamas looking at the scree
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@thegeminiadvocate
Gosh this one hits so hard. Sometimes I even catch myself saying these things!! Image description: Lexi in red and black pajamas looking at the screen smiling and then frowning on the beat. The text above her says, “you’re too young to be sick. I wish I could stay home all day. What doesn’t kill you makes you stronger” #chronicillnessawareness #chronicallyawesome #spooniewarrior #spooniecommunity #invisibleillness #toxicpositivity #mogad #nmosd #pots
#Nmosd Reel by @letitia_annamalay - 8 years of simultaneously wishing that I didn't have this disease but also being grateful that it changed my approach to life for the better 🙏🏼💕 E
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@letitia_annamalay
8 years of simultaneously wishing that I didn't have this disease but also being grateful that it changed my approach to life for the better 🙏🏼💕 Every December since 2017 I relive everything. I can smell the sanitizer in the hospital room, hear the MRI machines, feel the pain of the brain infections and hold the same fear in my chest. But every year I get better at handling it ✨ Cheers to my 20 year old self, she survived the most🥂 #nmosdsurvivor #NMOSD #neuroimmunedisease #neuroimmunecommunity
#Nmosd Reel by @running_through_autoimmune - My first run back post relapse! It wasn't the fastest, the furthest, or the smoothest but it was GLORIOUS! After weeks of my body needing rest and bui
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@running_through_autoimmune
My first run back post relapse! It wasn’t the fastest, the furthest, or the smoothest but it was GLORIOUS! After weeks of my body needing rest and building strength and cardio training in the gym, today it was time to run! It reminded me what my body can still do and how amazing it is to be able to run, feeling grateful! . Living with chronic illness means starting over (again and again). And that’s okay. Progress isn’t about perfection, it’s about showing up when you can, and celebrating the small wins along the way. . Today, this run is a big win🏃‍♀️💛 #mogad #autoimmune #chronicillness #nmosd #nmo #ms #autoimmunedisease #antiinflammatory #holistichealth #running #hoka
#Nmosd Reel by @felipessimas (verified account) - Hoje, vim compartilhar com vocês um momento que afetou nossas vidas de forma inesperada. Eu, Felipe Simas, fui diagnosticado e enfrentei a neurite ópt
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@felipessimas
Hoje, vim compartilhar com vocês um momento que afetou nossas vidas de forma inesperada. Eu, Felipe Simas, fui diagnosticado e enfrentei a neurite óptica, uma condição que pode ser um dos primeiros sinais da doença do espectro da neuromielite óptica (NMOSD) - uma doença autoimune rara que afeta o sistema nervoso central, principalmente o nervo óptico e a medula espinhal. Foi assustador lidar com sintomas como perda de visão e dor ao mover os olhos. Aquelas sensações despertaram um alerta dentro de mim, um sinal de que algo não estava bem. Buscar ajuda médica foi crucial, e só assim pude começar a entender o que estava acontecendo. Minha jornada destacou a importância de não ignorar os sinais que nosso corpo nos dá. É vital prestar atenção imediata a esses sintomas e buscar um diagnóstico correto. Fazer parte da campanha Iluminando Caminhos na NMOSD, da AstraZeneca, tornou-se uma forma de compartilhar minha experiência e incentivar outros a cuidarem de sua saúde e procurar assistência médica. Se você quer saber mais sobre essa condição e como buscar ajuda, confira: bit.ly/iluminando-nmosd. Juntos, podemos iluminar caminhos e espalhar a conscientização sobre a NMOSD. #IluminandoCaminhosnaNMOSD #NMOSD #DoençaRara *PUBLI Referências: 1. Shumway CL, Patel BC, Tripathy K, De Jesus O. Neuromyelitis Optica Spectrum Disorder (NMOSD). 2024 Jan 8. In: StatPearls [Internet]. Treasure Island (FL): StatPearls Publishing; 2024 Jan–. PMID: 34283474. 2. Faisal M, Matarneh A, Alshahwani I, Al-Allaf O, Al-Allaf AW. Neuromyelitis Optica Spectrum Disorder and Autoimmune Rheumatological Diseases: A Report of Two Cases and Literature Review. Cureus. 2022 Jun 20;14(6):e26138. 3. Wingerchuk DM, Banwell B, Bennett JL, Cabre P, Carroll W, Chitnis T, et al.; International Panel for NMO Diagnosis. International consensus diagnostic criteria for neuromyelitis optica spectrum disorders. Neurology. 2015 Jul 14;85(2):177-89.
#Nmosd Reel by @theblindcook (verified account) - #ad Despite experiencing vision loss due to neuromyelitis optica spectrum disorder (#NMOSD), I haven't stopped doing the things I love. This Vision
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@theblindcook
#ad Despite experiencing vision loss due to neuromyelitis optica spectrum disorder (#NMOSD), I haven’t stopped doing the things I love. This Vision Awareness Month, remember to take care of your eyesight, but know you can still live a full life and achieve amazing things with vision loss. ​  ​ For helpful resources on navigating vision changes and NMOSD, go to NMOSDWontStopMe.com or visit the link in my bio. ​ ​ #VisionAwarenessMonth​ #NMOSDWontStopMe ​
#AmgenPartner ​
@amgenbiotech
#Nmosd Reel by @alexionpharmaceuticals - Neuromyelitis optica spectrum disorder (#NMOSD) is a rare and debilitating autoimmune disease characterised by unpredictable relapses, or attacks. Jus
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@alexionpharmaceuticals
Neuromyelitis optica spectrum disorder (#NMOSD) is a rare and debilitating autoimmune disease characterised by unpredictable relapses, or attacks. Just one relapse can lead to permanent disability, like vision loss or paralysis. In honour of #NMOAwarenessMonth, learn more about the condition ⬆️
#Nmosd Reel by @amgenbiotech (verified account) - Neuromyelitis optica spectrum disorder (NMOSD) is a rare and devastating disease that can lead to vision loss or paralysis. Like all rare diseases, it
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@amgenbiotech
Neuromyelitis optica spectrum disorder (NMOSD) is a rare and devastating disease that can lead to vision loss or paralysis. Like all rare diseases, it poses a tremendous challenge not only for patients, but also their caregivers. Hear from more caregivers like Holly who tirelessly support their loved ones as they navigate life with a serious illness. 🔗 Tap the link in our bio.

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