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  3. iamcatpowers
Whenever newborn pictures of Charlie pop up on my phone, I realise I look at life as before and after his Spinal Muscular Atrophy (SMA) diagnosis. Those early photos are reminders that I didn’t know s
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🩵 Charlie’s 1st birthday is tomorrow. Tomorrow, I will celebrate how far we’ve come this year, how grateful I am that he’s even here. But these are the memories of the first 7 weeks I haven’t revis
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👋 Lots has changed since I last posted 6 years ago. We moved to London in April 2019 and welcomed our beautiful daughter, Agnes, during the pandemic in July 2020. In August 2024, our son, Charlie,
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THANK YOU, ALL!!! I’ve said it all in the video, but we’re so grateful to each and every one of you who have supported Charlie’s GoFundMe. Asking for help can feel like failure, but I actually think
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there’s a different kind of connection when someone actually sees you. not the polished version. the real one. the one shaped by a life not everyone understands. somewhere in the middle of london m
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I’m really uncomfortable posting this. But when I found out about Charlie’s diagnosis, I vowed to do everything in my power to give him the best quality of life possible. Friends and family are al
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My 19-month-old son has started practicing steps for the first time. This is after being told 18-months ago that he has a rare, life-limiting condition and would die without treatment. What a surrea
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My son will always be disabled, but I won’t always be able to pick him up. 🩵 I get this question a lot and I’m so happy to share my feelings about it. There will absolutely come a day when it’s not
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Today is a day I just feel really damn lucky. Lucky to have these two and all of the mums/friends who lift me up every day to keep going. Being a complex needs mom (mum, sorry, I go back and forth) is
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Sorry if I didn’t text you back in February, it packed a punch. 🤛 Bring on Spring!
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Today is Rare Disease Day. In medicine, doctors are taught to assume that the simplest explanation is usually correct to avoid patients being misdiagnosed with rare illnesses. But for 6% of the world
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Before I had either kid, I was convinced I would be militant about screen time. When Aggie was really little, she refused to watch a screen for more than 30 seconds and I realised how challenging that
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Informazioni su @iamcatpowers

Cat Powers-Kessler | SMA mom è un nano influencer di Instagram. Con 2.5K follower e 76 post, l'account di iamcatpowers mostra un rapporto follower-seguiti di 2.6:1. Visualizza tutti i contenuti in modo anonimo su Pictame - nessun login richiesto.

Il tasso di coinvolgimento di iamcatpowers è al 13.01%. È il 160% sopra la media per gli account con 1K-10K follower (5%) — segno di un pubblico davvero connesso.

Degli ultimi 12 post, il 67% sono video e il 33% foto. I contenuti appaiono più o meno ogni 41 giorni. Le didascalie tendono ad essere dettagliate, con una media di 776 caratteri.

13.01% di coinvolgimento — 160% sopra la media per account con 1K-10K follower.
Post circa ogni 41 giorni.
Rapporto follower/seguiti di 2.6:1.

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iamcatpowers
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@iamcatpowers

Cat Powers-Kessler | SMA mom

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#smatype1#disabilityparenting#zolgensma#raredisease#medicalmama#screentodayforSMA#SMAtype1#disabilities

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🇺🇸 mom of 2 in London 🇬🇧 Gene therapy saved my son 🧬 SMA Type 1 Sharing the highs and lows of complex needs mother...

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