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#Heds Reel by @well.withnell - Most people think hypermobility is just about flexible joints But if you have hEDS or HSD, it can come with dysautonomia which makes your nervous sys
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@well.withnell
Most people think hypermobility is just about flexible joints But if you have hEDS or HSD, it can come with dysautonomia which makes your nervous system work overtime just to keep your body regulated That can show up as dizziness, fatigue, racing heart, or feeling wired and overwhelmed for no reason Hypermobility also causes your muscles and nervous system to have to do extra work to keep everything in place Your body isn’t broken. It’s over functioning. Stop pushing through and start working with your body instead of against it Comment “SYSTEM” for my free nervous system regulation toolkit :) #hypermobility #heds #autonomicnervoussystem #dysautonomia #nervoussystemhealing
#Heds Reel by @krj.coaching (verified account) - Yesterday I shared what isn't included in the Beighton score, and today I'm showing you some of those joints in action - neck, shoulders, ribcage, jaw
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@krj.coaching
Yesterday I shared what isn’t included in the Beighton score, and today I’m showing you some of those joints in action - neck, shoulders, ribcage, jaw, hips, feet - because they absolutely influence how a hypermobile body functions day to day. For context, I’m a 9/9 on the Beighton score, and many of my other joints move even more than it captures. Some have been painful at times, some aren’t, and some have stiffened over the years. Bodies adapt! Strength training, bracing strategies, injury, and protective tension can all reduce visible range without changing the underlying connective tissue pattern. The Beighton score assesses nine specific joints and is part of the current diagnostic criteria for hEDS. It’s helpful and standardized, but it doesn’t assess the cervical spine, rib mechanics, shoulder translation, jaw mobility, foot behaviour, or pelvic organization. It also doesn’t capture what your mobility looked like historically before stiffness developed. Diagnosis of HSD or hEDS is layered and naunced. It considers historical hypermobility, tissue qualities such as skin extensibility and mild fragility, and broader systemic patterns - not just one score. A few bendy joints don’t automatically mean a hereditary connective tissue disorder, and a lower score doesn’t automatically rule one out either. It’s also important to remember that not every provider has specific training in hypermobility. I’m not an oncologist, and general practitioners aren’t automatically specialists in connective tissue disorders. Some have a deep interest and knowledge base, and some simply haven’t had exposure to it. I had to educate myself, review the criteria carefully, and bring my findings to my GP. I know that seems unfair and frustrating but it’s true ❤️ As a physio, I assess the whole body — how load is shared, where compensation happens, which areas are excessively mobile, which have stiffened, and how it all connects. My goal is to help you understand the framework so you can piece your own picture together with clarity and walk into appointments informed. #HypermobilityEducation #hEDS #HSD #BeightonScore #WholeBodyAssessment Education only, not medical advice ❤️
#Heds Reel by @dr.melissakoehl.pt - Symptomatic hypermobility is often called an invisible illness. But when you know what to look for, the hypermobility part actually leaves a lot of v
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@dr.melissakoehl.pt
Symptomatic hypermobility is often called an invisible illness. But when you know what to look for, the hypermobility part actually leaves a lot of visible clues. 👉 I just sent a deep dive with more info on this to everyone on the waitlist for the spring round of my Ground Control program (intro to stability and pain management for hypermobility). 👉Comment or DM ShortFoot to add yourself to the Ground Control waitlist and get this helpful email, along with other pre-school education I’m sending out to this waitlist over the next few weeks. No obligation (seriously!). Just more helpful info 🦓 Many hypermobile humans have a flexible flat foot. That can show up as a callus on the big toe like I have here. A callus there can mean other things too. But it should be a cue to look closer at foot mobility, because excessive pronation from lax ligaments is common in hypermobile bodies. When the foot is very flexible, it’s easy to just hang out on passive structures instead of using that motion like the quick spring it’s meant to be. And if strength up the entire chain isn’t there to support that mobility, problems can build. Supportive shoes or an arch support can absolutely help. But improving strength and control of the foot is just as important. Also important: feet are supposed to pronate. A rigid arch all the time isn’t ideal either. And some people have a rigid flat foot that’s stuck in pronation, which is a different issue entirely. Yes, it’s nuanced! But little signs like this are clues worth paying attention to. If you want to go deeper, I just sent an email to my Ground Control waitlist with more, and sharing two more of my favorite hypermobile foot exercises! 👉Comment or DM ShortFoot to add yourself to the Ground Control waitlist and get this helpful email!! On this waitlist you’ll also get other pre-school education I’m sending out over the next few weeks. No obligation. Just more helpful info 🦓 #EhlersDanlosSyndrome #hEDS #EDS #hypermobility
#Heds Reel by @growwithmenatalie (verified account) - The Beighton misses a LOT. Just because you can't do the most characteristic of party tricks, doesn't mean you don't have hypermobility. It can show
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@growwithmenatalie
The Beighton misses a LOT. Just because you can’t do the most characteristic of party tricks, doesn’t mean you don’t have hypermobility. It can show up in so many different places and different joints. Sometimes if we have enough instability, which often comes along- we can actually get really tight in certain areas, which is basically our body trying to create the stability it’s lacking. The signs aren’t always super obvious. They can be- but just because someone has more obvious hypermobility doesn’t mean they have more problems. They might, they might not. Connective tissue is everywhere in our bodies. You can’t see someone’s GI issues, pelvic pain, or migraines from the outside. When it isn’t as visually obvious, it’s really easy to gaslight yourself. “Well I can’t do that one weird thing” “Well their knees bend back so much farther” But it isn’t a competition. And we can slowly learn to trust ourselves, what we feel and what our body is telling us. Connective tissue disorders like all the different subtypes of EDS and HSD exist along a spectrum, so it can look entirely different from person to person. The best thing I ever did was learn to trust myself. It’s a slow process, but understanding my my body alone has changed everything for me. Of course this is not medical advice. Just a simple invitation to listen and trust yourself more. You are always valid🤍 #hypermobile #hypermobility #heds #hsd #chronicpain
#Heds Reel by @coachashleymobility (verified account) - I'm hypermobile. My husband is not. Same kitchen. Same task. Very different outcomes. He walks around the counter. I run into it. He does dishes st
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@coachashleymobility
I’m hypermobile. My husband is not. Same kitchen. Same task. Very different outcomes. He walks around the counter. I run into it. He does dishes standing. I lean like I’m in a Victorian fainting scene. He stands up. I get a full POTS rollercoaster. Hypermobility isn’t just about flexibility. It’s about your body turning everyday tasks into a contact sport that requires Olympic level recovery. #chronicillness #hypermobileehlersdanlossyndrome #heds
#Heds Reel by @chronicallybent - There's a lot of content out there about hEDS, so as someone with a rare form of EDS, I thought I'd make some videos of how each form of EDS presents
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@chronicallybent
There’s a lot of content out there about hEDS, so as someone with a rare form of EDS, I thought I’d make some videos of how each form of EDS presents in the body by system. Please don’t use this to self diagnose! This is for educational purposes only. Additionally, these symptoms may be seen across types other than listed as well. The types listed come from the EDS Society, as well as research studies I found. It doesn’t mean that other types can’t experience them, I just put what’s been studied. #raredisease #classicallikeehlersdanlossyndrome #hypermobility #hypermobileehlersdanlossyndrome #ehlersdanlossyndrome
#Heds Reel by @thebendypediatrician - There's a misconception amongst clinicians that an injury in someone with joint laxity/instability from hEDS/HSD will act and feel the same as in some
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@thebendypediatrician
There’s a misconception amongst clinicians that an injury in someone with joint laxity/instability from hEDS/HSD will act and feel the same as in someone with normal healthy connective tissue. Sure, sometimes it does, but often injuries behave very differently. @tismpump makes a great point. Injuries may be severe but go without being noticed by the patient because not only is it “normal” for us, but it may not take the same force to cause the injury. My favorite example is when I dislocated my shoulder while sneezing. True story. So unless we as clinicians understand that we’re working with a different system, we can’t adequately help our patients. Have you experienced something similar? Comment below 👇 Accessibility: stitch of a creator with brown hair and long nails then a light skinned woman with short brown curls and black tshirt, glasses, speaking direct to the camera about the difference between a dislocation for most people vs people with HSD/hEDS. Medical disclaimer: This video is for educational purposes only #heds #meded #dislocatedshoulder #ehlersdanlossyndrome #thebendypediatrician
#Heds Reel by @loveandlightwellnessvt - spoiler alert: your whole body is basically connective tissue. 👀 i didn't know that all of these things were/had connective tissue!! getting diagnos
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@loveandlightwellnessvt
spoiler alert: your whole body is basically connective tissue. 👀 i didn’t know that all of these things were/had connective tissue!! getting diagnosed with EDS made it very clear to me that there is a reason all of these symptoms were connected. 🔗 want support with all things connective tissue? as a nationally board certified health and wellness coach, i specialize in helping folks through the initial diagnosis phase alllll the way through to care management. 🙇🏼‍♀️💛 i do free consultations, and you can find a link to book at loveandlightwellnessvt.com! it’s right on the homepage. 💻⭐️ #heds #pots #mcas #accessibility #connectivetissuedisorder
#Heds Reel by @ditto.daily (verified account) - Why are Ehlers-Danlos Syndromes (EDS) / joint hypermobility and neurodivergence often co-occuring? 🔷 23-46% with hEDS have ADHD 🔷 39% with hyper-m
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@ditto.daily
Why are Ehlers-Danlos Syndromes (EDS) / joint hypermobility and neurodivergence often co-occuring? 🔷 23-46% with hEDS have ADHD 🔷 39% with hyper-mobility conditions have autism But how does a connective tissue disorder affect the brain? Theory 1: The Connectivome  Your brain isn’t just neurones floating in space - it’s built on a scaffold of connective tissue. This includes: - The extracellular matrix (structural support between brain cells) - Blood vessels and the blood-brain barrier - Meninges (protective layers around the brain) In EDS, faulty collagen doesn’t just affect joints - it affects brain structures too. This can disrupt:  → How neurones connect & communicate  → Brain development & plasticity  → Neurotransmitter regulation  → The blood-brain barrier’s integrity Theory 2: Proprioception Overload  Your brain constantly predicts where your body is in space. When it’s wrong, it sends a “suprise signal”. With hypermobile joints = unpredictable movement patterns = constant error signals flooding the brain → heightened sensory sensitivity and emotional reactivity. For those already predisposed to sensory differences, this creates a feedback loop that can amplify neurodivergent traits. Theory 3: The Blood Flow Connection  Weak connective tissue in blood vessels → dysautonomia/POTS → reduced blood flow to the brain → impacts executive function, emotional regulation, and contributes to neuroinflammation (implicated in neurodivergence). ⚠️ Mechanisms still being researched. Baeza-Velasco et al. Autism in the context of joint hypermobility, hypermobility spectrum disorders, and Ehlers-Danlos syndromes: systematic review and prevalence meta-analyses. Autism. 2025 Kindgren et al. Prevalence of ADHD and Autism Spectrum Disorder in Children with Hypermobility Spectrum Disorders or Hypermobile Ehlers-Danlos Syndrome: A Retrospective Study. Neuropsychiatr Dis Treat. 2021 Feb. Eccles et al. A model linking emotional dysregulation in neurodivergent people to the proprioceptive impact of joint hypermobility. Philos Trans R Soc Lond B Biol Sci. 2024 #ehlersdanlossyndrome adhd #autism #neurodivergent #hypermobility #jointhypermobilitysyndrome
#Heds Reel by @sarahthebookfairy (verified account) - #chronicillness #chronicillnessawareness #heds #hypermobileehlersdanlossyndrome #hypermobility #ehlersdanlossyndrome
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@sarahthebookfairy
#chronicillness #chronicillnessawareness #heds #hypermobileehlersdanlossyndrome #hypermobility #ehlersdanlossyndrome
#Heds Reel by @potsandprs (verified account) - WHY these things may correlate with being hypermobile 🤸‍♀️ 🤕 Always getting hurt in the most random ways: extra joint laxity can make even walking
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@potsandprs
WHY these things may correlate with being hypermobile 🤸‍♀️ 🤕 Always getting hurt in the most random ways: extra joint laxity can make even walking down the stairs feel like an extreme sport, and make it far easier to get injured doing “normal” activities 🚶‍♀️ 🏃‍♀️ Running into things… constantly: Many people with hypermobility and connective tissue disorders have impared proprioception, making it harder for us to tell where our bodies are in space 🥴 🫣 Chronically tight upper traps: this is an incredibly common area of tightness for bendy folks, due to the muscles being forced to compensate for lax joints in the area 😵‍💫 Getting dizzy + your heart racing when you stand up: potentially linked to dysautonomia such as POTS, a very common comorbidity with things like hEDS (Hypermobile Ehlers Danlos Sydrome) and HSD (Hypermobility Spectrum Disorder) I honestly could make SO many parts to this 🥴🫣 Which ones do you relate to? What would you add to this list? Lmk in the comments 👇 #heds #hsd #potsie #hypermobility
#Heds Reel by @missmanic_creations - Hypermobility? Joint pain? Arthritis? Learn about some of my ring splints! Under 60 seconds. Shop link in bio! ✨🧚‍♀️ #hypermobility #arthritis #eds
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@missmanic_creations
Hypermobility? Joint pain? Arthritis? Learn about some of my ring splints! Under 60 seconds. Shop link in bio! ✨🧚‍♀️ #hypermobility #arthritis #eds #chronicillness #ringsplints

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