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Hypermobile Ehlers-Danlos Syndrome (hEDS) is more than just flexible joints. 💜 It affects connective tissue throughout the body, which can cause pain, fatigue, and other symptoms. Learning about hEDS
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#hedsawareness #ehlersdanlossyndromeawareness #chronicpainawareness #zebrastrong
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🧬 This page exists to raise awareness about hypermobile Ehlers-Danlos syndrome (hEDS) 🦴 Sharing education, symptoms, and real life with joint hypermobility 💜 Supporting those living with chronic pa
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One thing research has taught me: patients often notice patterns long before medicine catches up. 💭🔬🧡 The most meaningful progress happens when clinical care, research, and patient experience work
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Living with Hypermobile Ehlers-Danlos Syndrome isn’t just about joints. For many of us, it’s navigating a whole web of connected conditions while trying to function in everyday life. Some days it fee
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Learning to work with my body instead of against it 💛Adding these to my growing collection of chronic illness resources:The Complete Nutrition and Diet Guide for POTS, EDS & MCAS by Sabia Roberta Sut
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With Hypermobile Ehlers-Danlos syndrome, one of the most useful fatigue-management strategies is often: 🧡 Stop using “good hours” like they’re unlimited 🔋🧡 A common hEDS pattern is: 1. You wake
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🧡 Grateful today and every day for the healthcare professionals who truly listen, care, and make a difference. Living with EDS can be overwhelming, but having the right support changes everything. T
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“What have you done now?”Unfortunately I participated in daily life again… 🦯✨ Turns out existing is surprisingly high impact when your joints prefer freestyle mode. The walking stick isn’t giving up
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Made these ring splints today 🫶 not perfect, but pretty proud for a first try ✨ still learning, experimenting, and figuring things out as I go, but seeing something functional come together with my o
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Getting ready for an appointment with Hypermobile Ehlers-Danlos Syndrome means packing for every possibility: braces, meds, electrolytes, snacks, heat patches… and somehow still forgetting something �
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Living with EDS isn’t just about being “flexible.” Good care looks like stability, pacing, pain support, nervous system regulation, accessibility, and being treated like your symptoms matter 🧡 A lot
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About @dazzlewithheds

Siân Ricketts (DazzlewithhEDS) is a verified Instagram growing creator in the Digital creator category. With 360 followers and 12 posts, dazzlewithheds's account shows a follower-to-following ratio of 0.8:1. View all content anonymously on Pictame - no login required.

dazzlewithheds's engagement rate sits at 4.40%. For accounts with 1K-10K followers, the average is around 5%, so there's some room to grow — though every community is unique.

Out of the last 12 posts, 33% are videos and 67% are photos. Notably, photos tend to get 8.1x more engagement than videos. Content shows up about every 11 days. Captions lean detailed, averaging 525 characters.

4.40% engagement rate — room to grow compared to average for 1K-10K follower accounts.
33% videos, 67% photos. Photos get 8.1x more engagement here.
Posts about every 11 days.

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dazzlewithheds
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@dazzlewithheds

Siân Ricketts (DazzlewithhEDS)

PublicDigital creator
Posts
12
Top Hashtags
#ChronicIllness#hEDS#myEDSchallenge#EhlersDanlosSyndrome#HypermobileEDS#InvisibleIllness#Hypermobility#EDS

Explore the most impactful hashtags used in recent posts. These tags highlight the core interests and trending topics that define this profile's digital influence and content strategy.

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Popular Hashtags

#travelphotography#sky#nails#moda#video#naturephotography#photographer#sun#trend#workout#instafood#baby
Followers
360
Following
448
Avg. Likes
15
Avg. Comments
1
Engagement
4.44%

🧬 Hypermobile Ehlers-Danlos Syndrome (hEDS) & Postural Orthostatic Tachycardia Syndrome (POTS) 📢 EDS Awareness • 📚 Ed...

www.dazzlewithheds.uk
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