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This is my EDSS disability trajectory (2004–2025) plotted against the MS Severity Scale, which compares disability level to disease duration. This post is about possibility — not a treatment protocol
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To Hell and Back: A Five-Year Journey Five years ago this month (in October, 2020), I hit my lowest point with MS. Four years into a wheelchair. Trigeminal neuralgia pain so severe I couldn’t speak o
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Eight years ago today, I was in a wheelchair with progressive multiple sclerosis. 👨‍🦽‍➡️ Over $1 million of the best MS medications had failed to keep me on my feet. Doctors told me I would never w
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I love to play in the dirt. For years, MS meant that wasn’t an option. You don’t do much digging or planting from a wheelchair or on crutches—hands full, footing uncertain, terrain unforgiving. A y
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Voice control has been a mobility game changer for me. Lights, temperature, daily stuff—things that used to require walking or wheeling ♿️ across the house or fine hand control are now just a few wor
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MS gave me heat sensitivity. I turned it into a post-wheelchair MS dojo. Infrared sauna heat and plant support unlock a spastic rigid frame and enable slow, controlled movement. Bass you can feel mo
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Loss doesn’t just take things away. Sometimes it destroys who you thought you were. Illness. Injury. Divorce. Death. Some experiences don’t bend your life— they break the version of you you were livi
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MS can be heavy. You can have all the “right” support… and still be unsupported. MS isn’t just about what’s in your corner. It’s how everything fits together. Doctors, meds, diet, movement, mindset,
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MS can be heavy. You can have all the “right” support… and still be unsupported. MS isn’t just about what’s in your corner. It’s how everything fits together. Doctors, meds, therapy, Diet, moveme
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MS fatigue isn’t just “tired.” It’s not lazy. It’s not not trying. It’s not in your head. It can feel like the power just got shut off. You flip the switch — nothing. You turn the key — nothing. An
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Not always practical, and great to be around 🍻
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Just dropped my latest MS disease activity update — and this one hits different. After 9 years of diet, exercise, and mindset work — the last 8 months tracked closely with the Octave test. On a 10 po
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About @that_guy_with_ms

Kent is a Instagram nano influencer. With 6.6K followers and 582 posts, that_guy_with_ms's account shows a follower-to-following ratio of 14.2:1. View all content anonymously on Pictame - no login required.

that_guy_with_ms's engagement rate sits at 0.56%. For accounts with 1K-10K followers, the average is around 5%, so there's some room to grow — though every community is unique.

Out of the last 12 posts, 83% are videos and 17% are photos. Notably, photos tend to get 1.6x more engagement than videos. Content shows up about every 26 days. Captions lean detailed, averaging 967 characters.

0.56% engagement rate — room to grow compared to average for 1K-10K follower accounts.
83% videos, 17% photos. Photos get 1.6x more engagement here.
Posts about every 26 days.
14.2:1 follower-to-following ratio.

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that_guy_with_ms
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@that_guy_with_ms

Kent

Public
Posts
582
Followers
6.6K
Top Hashtags
#multiplesclerosis#msawareness#MultipleSclerosis#chronicillness#MSAwareness#neuroplasticity#healingjourney#mindset

Explore the most impactful hashtags used in recent posts. These tags highlight the core interests and trending topics that define this profile's digital influence and content strategy.

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Popular Hashtags

#music#smile#family#life#amazing#instagram#lifestyle#gym#motivation#sunset#dog#model
Following
464
Avg. Likes
33
Avg. Comments
4
Engagement
0.56%

Did $1 million of #MS meds, in wheelchair 5 years. Now out and healing. Ask better questions. Respond differently. Do ha...

thatguywithms.com/
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